“I caught a piece of the sunshine, put a little hope in me
But after the flood raged, there’s nothing really left to see
But I was not done, or beat, the violence was a source of strength:
Not everything is always just as it seems…”
~ Guster
I gave Jonah his pill right off the bat Sunday morning and warily waited to see what kind of kid the world was going to deal me this day. Attack number one came early; we were sitting together on the couch watching Thomas the Tank Engine when he turned sideways suddenly and kicked me in the face. I jumped up to avoid further injury and held him on the couch until he quieted, then we counted down together and he seemed okay. (I think I’ll have a bit of a shiner though).
I guess I got a little squirrely. I knew I wouldn’t have help until early afternoon at best and I was tired of being afraid. I decided that even though the new 5-point harness I ordered for our car didn’t arrive yet, I would secure him in the car seat with the shoulder strap, tight, and lap belt too, and pull the driver’s seat up as far as possible. I figured he’d be safe and I could just drive him to see the train and wherever else, anywhere else, just to eat up time. He did get to see the train but he was cranky and seemed really light-sensitive.
He asked: car ride? …so I decided to take a familiar loop through Altamont and back around to Voorheesville. Very suddenly and without provocation, Jonah unbelted his seat belt (which I thought was too far away for him to reach) and launched himself at me, grabbing a chunk of my hair and my glasses, which went flying. I can’t see to drive without them, so I pulled over abruptly. Quite automatically, without much thought or premeditation, I found my glasses, got out of the vehicle, closed the door, walked to the front of the car, pulled my cell phone out, dialed 911, and blubbered out the story of my Lifetime TV movie life to the dispatcher. I’m afraid to drive, I said. I’m afraid he’s going to make me go off the road and crash, I cried.
Passing motorists gaped at the sobbing lady on her cell phone. Soon I was surrounded by three emergency vehicles (I told them no ambulance was needed, thanks anyway) all filled with people who wanted to help me but seemed confused as to where to take us exactly. The whole time Jonah was in the car and pretty calm. I thought maybe they’d think I was nuts, he was so calm — I wasn’t sure they’d even believe me — but I had teeth bite marks from yesterday and a brand new puffy cheek to prove I was indeed, I guess, a ‘battered mom’. Finally they put Jonah, car seat and all, in the back of a cruiser and I followed them to the AMC/CDPC crisis center, where a doctor talked to us briefly and I called my friend M to come and meet us there. I told the doc I thought I could handle things with M’s help; they fed Jonah another dose of clonodine, a peanut butter and jelly sandwich, chips, and a nuclear-orange colored drink while he watched Toy Story and I rested on a bench, closing my eyes, focusing on breathing. In, out. In, out.
“…so take a breath and step into the light….everything will be all right…”
~ Guster
He stayed incident-free once we got home, and my friends P and Mx kindly dropped me off some yummy cider, pie, and black soda. After I put Jonah on the bus to beautiful, blessed Wildwood School, I’m going to bring the cider and pie to work, heat both of them up, sit at my desk, eat, drink, and smile from the complete respite of it all.
Sweet, wonderful work. Marvelous Monday.
Bring it on.
Your words make me wonder at the strength each of has, hidden sometimes but there all the same.
I hope Monday will indeed be marvellous and I hope Tuesday will be even better. I became a Grandmother on Sunday so my day was very different.
If prayers can work miracles then there will be one coming your way very soon I am sure.
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Congratulations “Gramma” Deborah! And I appreciate your kind words and thoughtfulness, always!
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Congratulations ! You identified another trigger for his meltdowns. You now know he is light sensitive. The picture clearly shows how much light bothers him. The tv is another trigger with the lights and moving colors. Some parents manage this light sensitivity with reduced lighting and other forms of lighting. Various autism groups sponsor trips to the movies with special lighting conditions and a freedom to move around when the movie is showing to make allowances for this sensitivity . Donna Williams in “Like color for the Blind” describes her light sensitivity and her autism among other aspects of having autism. She also discusses the use of colored glasses. These colored glasses help some and not others. Trying different colors to see if the colored lenses helps seems to be the only way to find out.
Few first responders such as police and firemen are trained in dealing with autism. Denis Debault conducts training and has a website with useful information from his perspective as a parent of a son with autism and work in law enforcement. You ended up in the emergency room because they can do little else in the absence of one of the crisis teams who are trained in autism.
Clonidine lowers blood pressure. The theory is that it helps autism because it increases the flow of oxygen to the brain.
Exercise has the same effect. Various disability groups sponsor a summer bike camp each year with most campers learning to ride a bike. Swimming, walking and running are good. Some adults with autism and some schools use regular exercise as a way to manage behavior and improve the ability to think. Exercise stimulates the brain to release chemicals that make you feel better and happier without negative side effects.
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Dear Marcia,
Can you *please* stop telling me CONGRATULATIONS every time I have a really shitty day?
Also, while I appreciate your advice, suggestions, and comments, I oftentimes already possess much of the knowledge you impart; please do not assume that because I am emotional in these blog posts that I am somehow therefore uneducated, uninformed, or unempowered.
Thanks!
Amy
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@Marcia – maybe you should start a blog of facts – so that you aren’t compelled to leave a giant essay of a redundant facts straight from google search within a comment.
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@Marcia – p.s if the readers of this blog wanted to read about “some parents, some parents, some parents” we would. What makes this blog interesting is the raw expeirence ONE PARENT and her ONE SON.
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