Jonah’s 15th birthday was Tuesday, March 7th. He did really well at school – they had a little party for him, he had a big ice cream cake at his residence, and in general he’s been better behaviorally again. I’ve been depressed, and off-the-charts anxious, and am figuring out new doctors and medications – hence my infrequent blog posts. I don’t want to complain and rave about myself but I’ve been isolating from people and sleeping too much, struggling to wait for the springtime, hoping it brings me peace with its sunshine and warmth. I am grateful I have a good job working for an organization that helps empower disabled people, which is kind of perfect for me.
One thing Andy and I have to do now is begin the process of identifying our hopes and goals for Jonah’s future, including adult placement options. It’s overwhelming to consider – seems every time I get accustomed to one part of this journey, another comes along and sweeps the rug right from under my already unsteady legs. I have a name and number to call and get us started. They recommend beginning the process at age 15, even though individuals at the Anderson Center for Autism do not “age out” until they turn 21. There’s a lot to it – we need to get things in place with social services, disability, ensuring we have guardianship, setting up a special needs trust, and more. And under this new administration I feel Jonah is less protected, his services jeopardized.
I hope I’m wrong.
I’ll be back as I can with updates, and photos, and to share more than I am able to lately.
Happy Birthday, Boo!
The Never Normal 