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I went to two wakes this week, one for my father’s cousin E and one for one of my father’s best friends, P.  The second wake was larger and had a winding line, like a gruesome ride at Disney culminating in a coffin and the grieving family.

While waiting in line, my father discovered he knew a woman next to us, and they started a conversation.  They both had known P (and his wife, who suffers from debilitating medical conditions herself) for a long time.

At one point, my father said to the woman:  One thing about P’s wife- no matter what, she never complains.  A virtue.  A dying breed of person.  A different generation.  Something.  And it’s true.  She doesn’t complain, though she’s had plenty to complain about.   She’s as strong and as brave as they come.

Later I was talking to another of my father’s friends.   He and his wife were asking about Jonah, and I started to cry a little – I had already been crying – and then I just stopped myself and smiled.  I related the story of the conversation my father’d just had about the widow – she never complains – and I told him, “Man, they’re never going to say that about me.  All I do is complain!”

“Yeah, at your wake they’re gonna say: one thing about her, she complained all the time,” he answered, and we laughed.

com·plain (from dictionary.com)

verb (used without object)

1. to express dissatisfaction, pain, uneasiness, censure, resentment, or grief; find fault: He complained constantly about the noise in the corridor.
2. to tell of one’s pains, ailments, etc.: to complain of a backache.

3. to make a formal accusation: If you think you’ve been swindled, complain to the police.

I complain a lot.  I become bitter.  And I get jealous.  Especially at this exact time of year, what with all the “holiday joy” of families and their regular kids.  I thank God for everything I have, and yet I can’t help the lump in my throat when I go on Facebook and see all the Christmas cookie recipes, the children participating in traditional activities with Advent calendars, lighting menorahs, captured in happy color-coordinated moments for Christmas cards, decorating, sitting on Santa’s lap, etc. etc. etc.  I know a lot of it is illusion, and there is suffering all over the place.  I know – or I think I know.

If I had no kids at all it would be different.  If I had other children it would be different.  Different-better? Different-worse?  I don’t want any more glimpses into all the awesome little family Christmases.  God forgive me but I don’t.  I should probably just stop looking at all the Facebook posts for a while.  Better yet, I should get over myself and focus on being happy for others.

Because of my circumstances and not really from some religious fervor, I focus more on Joseph and Mary – her laboring and giving birth to Jesus, and laying him in a manger.  I love the idea of a miracle-star in the sky, and the little drummer boy, and three wise men.  (Surely there was at least one wise woman?)  All the animals.  Shepherds. Everything about it.  A Lord born poor.  As poor as poor gets.  It’s amazing if you really think about it, whatever your beliefs.

Of course I love that there will be presents for Jonah-Boo, and I hope he enjoys them.  Andy will bring him up to my mom’s, just like on Thanksgiving.  We can hope for a calm Christmas, but it’s always the spin of a roulette wheel.  Place your bets.

I wonder if Mary complained.  The Bible doesn’t tell us nearly enough about Mary, if you ask me.

Yesterday I took this snippet of video to try to perhaps capture a little more of how Jonah acts and what he understands.  We give him black soda and other treats on Saturdays she says defensively.

Boo was pretty good, doling out his kisses and hugs with giggling smiles and lots of requests for car ride.  But he did have his bath and we squeezed in some Train on TV and some Oompa Oompa.

Then I came home and there were the Facebook posts of happy children hanging ornaments and helping bake gingerbread men, and the jealousy rises like bile.  I see it, I know it’s there, I know it’s dumb, I hate it.

I choke on it.

So this morning Father N sent me an e-mail from El Salvador, where he is working for CFCA.  (It’s the only charity of its kind where you can sponsor an elderly person if you want).  Father has his stipend check sent directly to Friends of Fontaine in Haiti.   I have a feeling he is very inspired by Pope Francis.  What a wonderful thing.

Anyway, here is the short video he attached…he met this particular woman during his stay and danced with her at one of the senior events.

I don’t much feel like complaining anymore.

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Thanksgiving 2013:   my mother cooked a whole traditional dinner for six people, including herself.  She bought us cheesecake pieces from J.S.Watkins.   She even replicated Poppy (my grandfather)’s time-consuming, amazing stuffing recipe – to this day, the best kind I’ve ever tasted.  When the food was finally prepared, cooked, and cooled, she removed half the Tupperware from her cabinet and divided some of everything into all the containers.

She readies three bags and divides again, placing food “for Amy and M” in one container, for “Andy and Jonah” in another container, and for “Jim” (my father) in a third container.  Whatever is left she keeps to eat, though she probably gives herself a lot less so that we all have what she considers to be “enough.”

The last “sit-down” Thanksgiving dinner we attempted was three years ago now, maybe?  Other people used to come over to my mother’s house for Thanksgiving.  Two aunts and two uncles joined us – and, before he died, Poppy came as well, arriving at sunrise to begin preparations as supremely awesome chef and overseer of the family and feast.  And, of course, in 1999 Andy joined the table.

Then Jonah was born, and he was never-not-even-once the kind of baby you could place next to you in the car seat carrier while you ate, so I’d be up and down from the table to nurse or comfort him.  When Boo was a toddler, we put Teletubbies or something on TV, let him wander around while we ate, and hoped for the best, because we really saw no other solution.  A few more years went by and we kept using distraction techniques to get through it all.  Either Andy or I would get up to watch him/change him, so at least one of us, at any given time, was able to eat.

Then shit got real, and Jonah started throwing things.   This is the 4th Thanksgiving I’ve described here but I’m not all that inclined to look back and re-read about the incident which decided the rest of our Thanksgivings since. I think Jonah threw the whole turkey plate against the wall or something.

My mother always brought out her best china for Thanksgiving, so at least the smashed pieces of platter were very pretty.  But we knew it was all done, the going-through-the-motions of a normal holiday – the hoping-he’ll-be-good-enough-so-we-can-at-least-eat.  Nobody came over anymore after that, of course, and then Andy and I broke up, and then Jonah went away, and now this new routine is the only vestige of a Thanksgiving family event we can manage.

One year when Jonah was about three or four, we drove up to one of my cousin’s then-homes, up north in the Adirondacks.  Jonah was an angel.  I mean to tell you he sat nicely on mama’s lap and ate what I offered him, drank what I gave him, and looked all cute in the process.  I was almost pissed, if you can believe it.  They’re all going to say:  I don’t know why Amy makes this autism thing into such a big deal.  Of course they didn’t, and if anyone thought it, they kept it to themselves.

So this year Andy drove Jonah to “grandma’s house” (for which Boo constantly begs) and I drove separately from my house, meeting them there around 12:30pm.  Jonah did well on the 90 minute car ride but was confused and agitated too.  He thought it was Saturday.  Any break in his routine throws him off, poor kid, and upon arrival he began rapid-fire requesting things right away.

My mother had made us sandwiches for us to eat and Jonah grabbed his, munching & pacing the kitchen, requesting….Oompa oompa?  Car ride?  (even though he’d just been on a 90-minute car ride) Potato chips?  Crackers?  Bath?  Lem-a-made?  Train?

We tried to keep him calm and were somewhat successful, at least at my mother’s house, where he ate his sandwich and chips and then asked again for train? train? train?  train? (add 16 or so more train? s in there).  Andy and I both know there is no train coming on Thanksgiving Day, but we put him in Andy’s car anyway and drove up past Russell Road and into Voorheesville until we were at the tracks.

There are four red lights on the signal post down the track a spell, and even Jonah knows that without a green light, there won’t be a train.  (This four-red-light rule does have its exceptions, but never on Thanksgiving).

Long story short, we did this twice — back and forth from grandma’s in Latham to the train tracks in Voorheesville, Jonah seemingly accepting the lack of train and enjoying the comfort of the route.  I took a few pics of him on the ride:

silly face

silly face

train comin' that way?

train comin’ that way?

Though no trains arrived, we made it back to grandma’s okay – and with Jonah’s favorite Prince CD and our promises of Oompa Oompa, Boo was even calm.    After a short last visit, Andy and Jonah drove back to Rhinebeck (Andy kept Jonah overnight at his apartment).

I drove up to my father’s house to drop off his dinner and hang out for a while.   Then I went home, where M and I heated up our delicious dinner and ate it on our laps on the couch, cause that’s how we roll now.  I could have eaten the dinner alone with my mother, or alone with my father, but any way you sliced it (no pun intended), two out of three of them would have to eat Thanksgiving dinner alone this year.  It’s a far cry from Better Homes & Gardens, but I did the best I could.   Stressful and holidays go together for lots of people; it’s just ours are likely a wee bit weirder.

My mother is 70 now, and tired, and we talked about it all some.  I don’t think she should do it anymore, the big dinners.  Jonah won’t eat much turkey anyway, even after his dad brings him home to his apartment and prepares it with a buttery roll and some lem-a-made.

So why don’t I do the cooking?  I’m incapable.  I can cook meals, but inconsistently well.  A turkey dinner would be the culinary equivalent of climbing Mount Everest.  Next year we’ll order in or something.

Nowadays there comes the now-common dread mixed with hope on every holiday.  This one could have been a lot worse, and I’m grateful it wasn’t.  I believe Jonah is maturing, however slowly, and getting better at asking when he needs something.  (I could kiss whoever taught him I want help please? for he uses it a lot and it avoids ramping up the frustration level for him).

I’m grateful too that throughout my childhood and teens, I had the privilege of celebrating Thanksgiving with a whole host of awesome, loving family members – aunts and uncles and cousins, sometimes 15 or us or more, held at Poppy & Gram’s house.  Memories.  Always there was the tray of carrots, sliced lengthwise and salted by Poppy.  My cousins and I sat against the island-bar on stools.  We twisted them back and forth, the wooden arms banging against the white and gold sparkle-piece patterned counter, until some adult told us to stop.  We felt tight-knit.. everything was warm.  There was so much love in that home!

My first Thanksgiving was spent with my foster-mother (foster-parents?), when my family didn’t even know I existed.  How strange.  Add to that the fact that I’m waiting to hear if my biological family even knows I exist, and everything becomes even more bizarre.  

Anyway, my mom and I drove down on Saturday to visit again, and things were more normal, and Jonah was happier.  And then all hell broke loose on our car ride.  When I showed you that video of a calm Jonah sitting, eating snacks, and watching a movie and I called it an amazing thing, it is because this is more the norm:

You can see Jonah crying and his daddy getting into the backseat to calm and control him.  Yes, I know I probably should have grabbed Boo’s feet, but he couldn’t hurt anyone but me so I chose photojournalism and getting kicked instead.  Probably not the best choice.

We don’t know why he had a meltdown.  We do know that breaks in his routine are the likely catalysts, and long holiday weekends are perfect for breaking routine.

My mom wasn’t there for this — she is now resigned to staying back and watching her shows until we return, unless I’m sick like I was last Saturday, and I don’t come at all.  On those occasions she is welcomed into the car because Boo still gets the backseat all to himself.  He does not like people sitting to close to him in an enclosed area like a car, and when he says “bye bye” as you try to get in the backseat with him, you best follow instructions and get while the gettin’s good.   I’m glad my mom wasn’t there to see her boy crying and twisting out of his harness.

I’ve gotta give Jonah credit though, because once he was past his meltdown and we returned to the apartment, he was happy and lovey, giving all three of us a full share of hugs and kisses and once again watching Oompa Oompa with a grin.

Whenever he is happy on a visit and my mom and I drive away, we say thank you, God.  And when it is an unhappy, disheartening visit, we say please, God.   Please and thank you.

I know my mother also prays a bunch of other old-school Mary prayers like the Memorare and the rosary.  I like them, but I pretty much stick to please and thank you.  Most times it’s all I can articulate when addressing the divine.

I hope it’s enough.

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FDA crackdown

The timing of things, people, and messages crossing my path is lately nothing short of bizarre.

While reading online news today, I came across this:

Why is the FDA cracking down on home genetic tests?

The article even uses, as example, the 23andme site where my biological second cousin just found me.

While I don’t totally disagree with what they’re saying, the first thing for which I should declare my gratitude this Thanksgiving is that I got in on the site before they shut it down.  It seems to me that the FDA is trying to “protect” us from information – to “protect” people from themselves, from our evident collective stupidity.

And the clock strikes 13.

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new love mail

…and then I went outside just now, and our mail carrier had come, and inside my mailbox were no fewer than three cards, all from dear friends, each telling me that when they count blessings on Thanksgiving, I am one of those blessings, and they wanted to make sure I knew it.

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I am humbled.  I don’t know what to say.  Just when I was reeling from the cruelty, in comes love to soothe and heal.  I wish I had sent Thanksgiving cards to all of them as well, for I am so grateful for these 3 expressions of love, especially with such exquisite timing.

All three cards are now taped in my kitchen doorway and I will look at them and re-read them all the time.  To those three friends – and to all who support me and hold me up when I don’t have the strength — thank you.

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new hate mail

So I applied for another part-time writing/editing/proofreading telecommuting job to supplement the one I have now.   As part of the process, I sent them the link to that article I wrote for HLNtv.com in the Spring of 2012, when I enjoyed my 15 minutes of fame.

I noticed there were several newer comments I hadn’t seen, since I haven’t looked at the page in a while.

One was hate mail:

“I can’t believe amy seems to PROUD of having institutionalized her son at the ripe old age of 9. That she wants folks to praise her for banishing her son from her home and seeing him maybe once a week.

That’s not love. That’s borderline child abandonment. Gee, I wonder why autistic kid who was sent away by his parents out of “love” isn’t especially happy to see them once a week.

I’ve no idea how amy sleeps at night!”

S.S. (Yes, those are her initials; her Facebook icon was a picture of puppies, too)…

While I can understand the judgement, I have no idea how Susie got the idea from this article that I was proud, or wanted praise.  I answered her comment, though she may never see it because hers was from a while ago, and I chalk it up to ignorance.  (If she only knew the half of it).

I have been candid and told my truths here, even when they are raw and ugly, mostly so others won’t feel alone.   I guess I have to expect the occasional hate mail.  Judging is easier than understanding, and I forgive “Susie Ignorant” for her cutting remarks.

But it still hurts.

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Of course as soon as I posted that last entry, the school called to say Jonah needed a management/two-person take-down that day.  But I wasn’t expecting a miracle, just enjoying a moment.  Or a few thousand moments.  In general, his behaviors have shrunk significantly in both frequency and severity.

Though I have been very sick (more migraines w/accompanying nausea etc.) since early Friday morning and didn’t go with my mom to see Boo yesterday, I am beginning finally to feel better.  I’ll see Jonah on Thanksgiving Day when Andy drives him up for a visit, and I can look forward to that.

I also am looking forward to and simultaneously afraid of revelation number two.  It will be a wandering story, because these kinds of revelations always are…and I’ll start here…

I have this wonderful friend, and though we’ve only spent six days or so in one another’s company, we have remained simpatico even though those six days are now three years ago.  She and her partner are embarking on the journey of foster parenthood, and many of the babies they will foster have been born crack addicted or will have other conditions and disabilities to overcome.

Having regarded Boo a “difficult” baby, I’m unsure how to imagine caring for an infant who won’t/can’t stop screaming, who won’t/can’t sleep, and who, somehow at the same time, needs to be nurtured and loved and held even more than a “normal” child.    I know in my heart that my friend can do this, and can also let go when it is time to do so, however heartbreaking it may be.

Is it heartbreaking for the baby, too?

I was in foster care from birth to six months old, after which I was adopted into my family.  I wish I knew the circumstances of the first six months of my life, other than that I was placed into foster care because “there was something wrong with my feet,” which my parents were later instructed to fix, early 70s-style, by attaching my feet to a straight bar as I slept.

I wonder how much those six months shaped me, and I wonder why, as my parents tell me, I did not seem to mind being suddenly moved to another environment with different people, different sights & smells — a different life.  It kind of worries me (half-kidding) that I was all fine and smiley in my new home.  I would not like it one bit if someone took Boo away from me at six months old — and I would not expect him to like it one bit either.  I mean, damn.  You can’t tell me babies are that malleable.  Or are they?

Or was I simply quite happy to wake up warm and so obviously loved and welcomed by a large family of parents, aunts, uncles, grandparents, the whole shebang?  None of my family has ever made me feel adopted.  Not ever.

Still, I was always curious about my biological relatives – and I wanted more medical history for both me and the only other blood relative I know (Jonah-boo) – so I did a spit kit DNA test to see if I could find some blood relatives on www.23andme.com.

It’s been a year now since my results came back.  I did find out which genetic markers I had and whether I was predisposed to all kinds of different illnesses and diseases.  I actually have a low risk rate (compared to the average population) of most everything except Restless Leg Syndrome (RLS).

I also found out what part(s) of the world my ancestors are from, and how much of me is from where, and who I am distantly related to based on DNA strands or whatever tool they’ve got to determine these things.

A genetic expert I am not.

I never found anyone closer than a “possible 3rd or 4th cousin” on the site, and tracing relations that far removed, especially with me being adopted, would be near-impossible.  Last month, though, I received a notification that a definite second cousin match, R, had been found.  She wrote to me through the 23 and me site, and I answered.

Long story short, it appears I have stumbled upon my biological relatives.

After sharing all the non-identifying information I had with R (which actually provides quite a lot of details, like four half-siblings born before me and each of their birth years and sexes, plus the fact that one had died before I was born),  she wrote back again.

It appears R’s father is my first cousin, and that one of his five aunts is my birth mother.  R’s whole family is still in the area where I was adopted (very close to where I live now), and though she now lives in the NYC/NJ area, she is coming up to see her family for Thanksgiving and will speak in person to them about all this.

One of the big potential problems is that, based on all that non-identifying information I’ve got, I’m the product of an affair (hence the four half and not full siblings), after which my birth mother reunited with her husband, and my birth father likely just took off running.

So I e-mailed R that I will understand if they don’t want to meet or see me, and that I’m not trying to impose myself on their family.

Exchanging e-mails would be great; meeting them would be cool.  But I need to prepare myself for complete rejection.  I cannot expect they’ll be rolling out the welcome mat for one who may only remind them of a painful situation perhaps best left in the decades-past.

Who knows what will happen?  I am used to questions, and mysteries, and instability, so this is not really all that different.    At any rate, I should know what has been decided, hopefully soon.

I really would like a picture of my birth mother, though, if that’s all I can have.  I want a partial mirror of myself to stare into, the way all my relatives (on both my mother’s and my father’s side) have certain commonalities; the features, behaviors, traits, and mannerisms they share are their mirrors.

I’d like a look at mine.

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World English Dictionary
Revelation
(ˌrɛvəˈleɪʃən)

— n
1. The act or process of disclosing something previously secret or obscure, esp. something true;

2. A fact disclosed or revealed, esp. in a dramatic or surprising way;

3. Christianity:

a. God’s disclosure of his own nature and his purpose for mankind, esp. through the words of human intermediaries.
b. something in which such a divine disclosure is contained, such as the Bible.

– 0 – 0 – 0 -<3

It has been a week or two of revelation.  Jonah, sprouting up tall and learning self-calming techniques from his teachers and caregivers, is almost a different child.  Yet Boo keeps it real always, never letting us forget he is and may always be what I half-jokingly refer to as a “punk ass.”

Consider this photo taken yesterday while on car ride:

his arm raised to hit, boo narrows his eyes and sucks his thumb like it's the bad-assest thing a kid could do

his arm raised to hit, boo narrows his eyes and sucks his thumb like it’s the bad-assest thing a kid could do

The difference is he did not hit that time.

I just turned back in my seat and ignored him, knowing my picture-taking, even sans flash, may be pissing him off.  He did not ratchet it up – no pulling my hair or Houdini-ing himself out of the harness.  No dissolving into tears or throwing reachable items from the backseat into the front.

I think he just wanted to enjoy his car ride, unfettered by attention or expectation.  We are beginning to understand one another more, in a strange way I can’t quite explain.  He is getting older, and learning independence skills.

Yesterday he cleaned up after himself like a pro, going overboard like only a child with autism can:  Upon deciding lunchtime is over, Jonah picks up his plate and any surrounding napkins or garbage, opens the garbage can lid, and carefully throws it all away.  (And instead of using the garbage can as a perch/stool…

???????????????????????????????

…like he used to, more often than not now he will sit at the table).

Then he grabs the potato chips and returns them to their rightful place – in the right-hand cabinet on the left-hand side of the second shelf up.

After that he comes back to the table, grabs up mama’s half-drunk teeny sized can of black soda, grandma’s just-opened can of white soda, and places them gently on the counter next to the sink.

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After pausing a moment to regard their placement, he rearranges the cans so that each faces exactly front and are perfectly next to one another.

“Oompa Oompa?” he asks next, and I start his now-favorite movie, Willie Wonka and the Chocolate Factory, on the DVD player.  Jonah first arranges and straightens the 3 remote controls on top of the TV, then reaches both hands out to similarly straighten the VCR and cable box.

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Andy brings him 2 plates, one with cut-up banana on it and the other with cheese and chives cracker.  Jonah happily sits on the floor next to the coffee table as the movie, at whatever point we stopped it before, starts to play.  My eyes fill with tears.  They don’t fall, but everything blurs as, for a few minutes, he is just a boy having a snack, watching a cool movie.

For a while he got up on the couch and I asked him if I could scratch his back, and he said yes in his cute small voice.  I asked if he wanted me to scratch over or under his shirt.  Under shirt? he requested, so gently I scratched his back.  Kisses? I asked him.  More kiss, he replied, which also means “yes, kisses.”  And so I kissed his head and his cheek and his foot, and we laughed together, and I thought about all the words and concepts he is learning, and how incredibly amazing it all feels.

Yes, last week when he was standing on the bed and I leaned in for a kiss, he leaned in too – and smacked me in the face.  But I’ll take it, if it means the pendulum is somehow holding itself in a mostly good space.

Some more pictures:

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Jonah and his daddy, who loves him very very much.

All good, this time of revelation.

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So I saw this article today about the earliest signs (in the first months of life) that your child may have autism.  I never thought to write about this before because I don’t want to be one of those people who instills fear in every parent’s heart, but I figure I should share our experience, for what it’s worth.

I have told part of this in The Wayback Machine but it bears repeating, especially in light of the new study.

When Jonah was just 6 or 7 weeks old – before his first vaccination – I brought him to a well baby visit with my wonderfully compassionate and intelligent family doctor, Jacob Reider.  Within a minute of greeting us, he looked carefully at Boo and, very gently, said, “hey, buddy…there’s a human in here” – and waved his hand slowly over Boo’s face.

“What is it?” I asked, the nervous first-time mother seeing nothing at all wrong with her child.

“Infants look at faces,” he told me.  “They love to look at faces.  Jonah is staring at the lights.”

With growing anxiety I recalled that Andy and I had already nicknamed Boo “moth boy” because he loved to look at lights so much.  We were amused by this and nothing more, but Dr. Reider was frightening me, and I expressed that immediately.

“Should we be concerned?” I asked.  He did not panic me — he told me not to worry, that we would keep an eye on Jonah…and we did.  When he did not speak (or seem to understand or communicate) by 18 months we had his hearing tested (no problems there) and then we were immediately placed in the early intervention system, where speech, occupational, and special education teachers came to our home twice a week or so to work with our son.

I was lucky enough to be a stay-at-home mother, so I was there with them as they brought toys and tools to help Jonah.  I believe if it weren’t for our careful, observant doctor, we would never have gotten such early intervention.

By the time Jonah was 22 months old, he was diagnosed with autism by a cold, flat-voiced female developmental pediatrician.  It was a day I will never forget;  I sobbed in my car for a long while before I could drive us home.  I got a second opinion from another developmental pediatrician and, in a much more caring manner, he confirmed the diagnosis.

I  believe that, if presented with 50 one-year-olds, I would have a decent degree of accuracy in picking out the ones who are on the spectrum, just by spending a few minutes with each.  Why?  Because hindsight is 20/20, and now I remember all kinds of signs.  And although I don’t believe all of these things about Jonah indicate autism, they are all things that stood him apart from other babies, almost from the very beginning of his life.

Jonah was vastly different from other babies.  He grunted a lot (we called it growling) almost since the day he was born.  He appeared to be trying to say “mama” as the months went on, but he only could call me “em.”  At ten months old, he was still not talking, and my mother chastised me:  “Why aren’t you teaching him his words?” she demanded.

I was left feeling scared, inadequate as a mother, and desperate to figure this out.  I read to my son.  I cuddled him, loved him with all my heart, tried to teach him.  I felt a phenomenal failure, I had baby blues, and my best friend suicided by shotgun when Jonah was 5 months old.  In short, I was a mess.

Jonah did not play with his toys correctly.  He turned all his Matchbox cars upside down and spun them on the table.  He spun anything he could, including himself, once he could walk on his own (very early, at 8 1/2 months old).  He enjoyed destructing block towers but not building them.

He wanted music, lights, adults, nursing (I nursed him until he was 15 months old) and water — pools, the ocean, his bath — but he ignored other kids as if they were mere obstacles.

And once, when I wanted to try to teach him the word “plane” and there was an airplane overhead, I held him in my arms and pointed to it.  “Look, Jonah, there’s a plane in the sky.”

He stared at my finger, not to where my finger was pointing.  I felt a chill run up my spine.

At one friend’s child’s first birthday party, he refused to leave the entrance, obsessed with opening and closing the screen door.  When we left early, a friend’s 9-month-old son waved and told us “bye bye” — and I deemed the kid a genius.

Of course after enough of these eccentricities in our son became apparent, we knew something was wrong.  The interesting part is I dismissed autism as a possibility together.  I mean, “those kids” crouched in the corner rocking.  They were non-responsive and un-affectionate.  They banged their heads on the wall.  Ignorance.

Our son was engaged, cuddly, and never acted in any way I would have called “autistic.”  He was born so perfect looking and seeming.  We’d won the risky lottery of baby making, avoiding Down’s Syndrome, birth defects, preemie problems, and any other life-threatening or frightening newborn realities.

And so his ultimate diagnosis was a knife in my heart.

Anyway, I do think early detection in infants may be possible.

You need an observant, caring, special doctor, but you can also look for signs on your own.  Don’t be paranoid, but don’t go into denial either.  Never underestimate the power of denial, to quote the Ricky character in the movie American Beauty.

Remember your child is always your child, and the diagnosis will never change that or define him (or her).

Of course if you have met one child with autism, you have met one child with autism.  All these things may or may not apply to other kids.

I just wanted to share our experience, in light of this new study.

If you feel alone, unsure, or just want to e-mail/chat please don’t hesitate to reach out to me.

More about Boo soon.  There are still “winter card” boxes with his card design included, and you can buy them here.  They make great non-denominational holiday cards.

Thank you!

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boo thanks you

Yay!  Jonah’s school updated their website.  If you click here, you can buy a set of 8 winter-themed cards (2 will be Jonah’s elf) for $10 each.

Boo thanks you!

Jonah made a perfect cave-boy  (Halloween of 2003; he was 19 months old)

Jonah made a perfect cave-boy for Halloween of 2003; he was 19 months old

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I have received a strangely overwhelming number of requests for boxes of the winter cards I mentioned in my last post, so I called Jonah’s school and of course there are extra — plenty to go around.

For the mere price of ten dollars, you too can own one of these “Boo Boxes”!

You can order them from the school’s website, but you’ll notice the “winter” cards look different from those in my last blog post.  (They’re from last year).  So if you want a Boo Box containing Jonah’s design, just wait until I post a blog entry (once the web order site is good to go with this year’s cards).

You can also post a comment saying you want one and I’ll get it for you, and mail it to you too, at no extra charge!

There are eight cards in each box, two each of four designs, so every  Boo Box gets you not one, but two of Jonah’s elf cards!

The now-famous elf card

The now-famous elf card

All for the low, low price of ten dollars!

Be a part of “Normal is a Dryer Setting” history and own one of Jonah’s truly unique brainchildren.  Or just send some cards out, and another person will find one years from now in a dusty flea-market bin when it’s out of print and worth millions.  Do you really want to take that chance?

All proceeds benefit the Anderson School for Autism.

Jonah ponders his next masterpiece

Jonah ponders his next masterpiece

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