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Posts Tagged ‘Scare-Me-Nots’

I felt anger yesterday.  And resentment.  Envy.  Ugly thoughts.  I don’t belong on facebook because of my hyper-sensitivity, but I’m on it to be the Scare-Me-Not mommy.  Facebook, childishly, really hurts.  I look around the site and see things that make me jealous, or left out, or angry.

Sisters on a beach vacation – beautiful, strong sisters I wish with all my heart were my own.  Family at Yankee Stadium – something I’d love to be invited to (and have vocalized this wish to my mother many times when she was one of the crew) but have been left out of over and over again until I gave up.  Young couples with their arms around each other, grinning ear to ear.  Friends who get 3 vacations in one summer.  The beach, the beach, the beach.  Their children playing together, jumping in the waves.  More sisters, four or five, all grinning, all looking like one another, all there for one another, no matter what.

(Oh, to bring Jonah back to the beach.  To hear him gleefully cry “the ocean!” again.  Now, it’s impossible.  Next year I will plan ahead and see if I can hire someone like Joe to go with me to help me with him – and we’ll take him to Cape Cod. )

The young family living in Hawaii.  The really nice rich cousin whose family goes to Rome, or Milan, or wherever else the 1% go for vacation.  The family who has little material possessions yet is drowning in love.

Then, the people fighting diseases, fighting for causes, fighting for their children…trapped in the midst of horrible things – all of them rooted deep in faith, all of them brave and uncomplaining.

And then there is me.

I don’t have the diplomacy to keep my mouth shut and I don’t have the grace to be uncomplaining and I don’t have the faith to hold me up.

For all those who so kindly commented on my last post, you see I am mostly just a little girl, emotionally – frightened and bratty as hell.  The spoiled only child who grew into the downwardly mobile idealistic hippie chick college student, who grew into a married woman who had a baby largely because she knew the child would have an amazing father (never even considering what kind of a mother I would make) who grew yet again into a numbed, dumbed-down version of herself – a broken, tired, jealous, Peri-menopausal mess.

There is no heroism in me and very little strength.

The acts of kindness I like to commit are only a conscious effort to combat what I know about myself…to have something, anything, to put some weight on the other side of the scale.  I like to believe myself a Buddhist, a least a little, and a Christian, a little more, and yet I fall so short of the ideals, the teachings.  I can’t stop these tight, tears-behind-my-eyes, ugly feelings that come roaring up inside me like a sickness.

So yesterday, when all was said and done, I eventually reaped what I had sown – ripe seeds of nasty, intrusive, pissy, uncalled-for emotions.

But I’ll get back to that later.

My mom and I drove down for our Saturday Jonah visit, and, as Andy said later, “he was on his A game.”  He was so amazingly good.  Almost too good.  What do I mean by that?  I guess mostly that it’s easier to leave him behind when he is aggressive and scream-y and difficult.  When he’s so good, I want to hold him close to me and never let go.

I taped a small “conversation” I had with Jonah but I’m not sure how easy it is to hear.  If you listen closely, at the very end, Andy asks, “Jonah, what’s a fart say?” and Jonah blows a raspberry.

And not only did he go swimming at the river,

He dropped his purple “octopus” in the river and then just pointed to it. “Go get it!” I told him…

…so he did.

Jonah and his dad, running back to the car at Jonah’s request to go to “grocery store?”

Andy, strapping Jonah into his car harness as Jonah laughs hysterically and clutches “purple octopus.”

…as visions of grocery stores dance in his head…

…but we also drove to “grocery store” at Jonah’s request to buy waffles and syrup and orange soda.  I watched as my boy got his own cart, spun it around and into the store, expertly steered it past both produce and people, and acted like a good little kid, only occasionally asking for something we weren’t going to buy (and taking it very well when we said “not now” or “tomorrow” or any of the other distraction words — anything but “no.”)    Jonah acted better, even, than some of the other kids there.  Of course we did have to go to the self-check out to avoid any waiting, but still it was so incredibly cool to watch him growing and learning and doing so well.

When my mom and I left, it was with the hope we always have when Boo is good – that he will continue in this direction, steadily learning patience and life skills as well as academics, gradually improving, progressively making his way out of aggression and into verbalization.  Socialization.  Happiness.  It never happens, of course – there is always the backslide, but every time, we hope – we have learned its necessity.

When I returned home from our visit, I drove up to the Rensselaerville Falls and made a large nature art creation.  Nobody was around.  Nobody almost ever is…even when the parking lot is full, most people are on the ridiculously steep trails.  I hefted rocks that I looked at after I was done, wondering how I’d lifted some of them at all — then, with my rock-circle-wall sufficiently constructed, I began decorating it, first with two branches to make a cross, then with fallen leaves I could find on the ground or trapped swirling around a stick in the water.

I sat on a rock shelf nearby and listened to the waterfall, always rushing, never-ending, as calming and reassuring a sound I’d ever heard.  I first searched for patterns in the sound, and for a while I opened myself further and let them enter me.  When I arose from my reverie, I realized I had made this creation for Liam the Brave –  The sweet, suffering toddler for whom I made the box.

And I walked fully clothed into the area of water surrounding me, into the middle toward the next waterfall level, feet groping as the water rose higher and higher on me.  To my calves.  My mid-thighs.  My waist.  Close enough to the drop of the falls for the sound to swallow my screams, loud and long and enraged.  I screamed and thrashed around in the water as if dousing Wicked Witches into melting pools.  I cried and I sobbed.  I yelled primal, awful AAAAAHHHHHs, and, finally, raised my body tall and straight.

I walked purposefully up and out of the pool of water, back over to my rock creation, and felt the rage rise again.  I barely stopped myself from deconstructing the creation, rock by rock, and shot-putting the smaller ones into the water, smashing them against rocks, pitching them at the falls.

But I didn’t.  It isn’t mine anymore, I thought.  It’s Liam’s now.

I picked up my things – my bug repellent, my camera, my sandals – and carried them up the hill, along the trail, and back to the car.

It was not until the moment I reached for the driver’s door handle that I realized I’d locked the doors (something I almost never, ever do).

With a sinking heart, I realized I’d left my purse (with my cell phone and my keys) in the trunk.

And what did I do?  I smiled.  The karmic slap.  You reap what you sow, you jealous, angry bitch.

Instead of finding someone in the Huyck Preserve office (I was sure it was closed anyway) or knocking on a neighbor’s door to ask if I could use their phone to call AAA, I just smiled again.

I know what I’ll do.

I searched around the parking lot for a little while until I found what I thought was a hefty, perfect, pointed rock.  Then I walked over to the driver’s side way-back triangle-window, and brought down the rock as hard as I could, right in the middle of the glass.  Instead of hearing a satisfying shatter, I watched a white scratch appear as the rock bounced off.  It was loud as hell, though, echoing throughout the park.  Again and again I brought the rock down on the glass.  More and more and more white scratches appeared.  Some small nicks.  Nothing much else.  By now the glass would need replacing anyway, I realized, whether I broke it or not.

So I reached down, grabbed up the uncomplaining rock, and walked maybe two feet away from the car.  I aimed as best I could and threw the rock at the window with all the strength I had.  Rock bounced off window.  I picked it up and threw it again, where it bashed in the silver trim halfway between the way-back-triangle window and the back window.  Still I threw it again, this time making the familiar white-mark-scratch, only this time even further off mark, on the back window.

At this point I was half in tears at my stupidity and half-laughing at the strange fun of trying to bash a window in with a heavy, sharp rock.

Finally, I walked to the office, which was actually open, and found a young man inside.  “Did you just hear all that noise?”  I asked him.  “Yeah,”  he answered.  “I was about to come out and see what’s going on.”

“What’s going on,” I said, “is  I’m trying to bash out my back window because I locked my keys in the car.  Do you happen to have a hammer?”

He did.  Both a sledgehammer and a pick-axe.  He chose the sledgehammer and held it out to me.  “Do you want to do it or do you want me to do it?” he asked.  “You do it, please,” I answered, not wanting to make a wild swing and cave in the roof or something.

“Well I’ve never done this before,” he said before giving the window just a wee more than a tap with his giant sledgehammer.  The result was my anticipated, satisfying SMASH, glass all over the inside of my car.

If you look closely you can see where I white-scratched the back window and dented the trim.

I thanked the dude, stuck my lanky arm through the hole, unlocked the back door, opened it, stuck my body in the car, used my lanky arm to reach the front door lock and unlock it, popped the trunk, grabbed my purse, slammed the trunk shut and the back door closed, and drove the hell home.

Another view of my happy little car

And so, in one of the longest posts I’ve written in quite some time, there lies the moral of the karmic smash:

Don’t waste time being angry, or jealous, or resentful.  You’ll end up falling under the illusion of surface-sight and misunderstanding.  You’ll end up making assumptions that may not be true.  You’ll end up a grasping fool, unhappy and repellent.  There is no good in any of it.  Let it all go. 

Learn it, Amy.  And right quick.

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A year ago today, Andy and I dressed Jonah in a green “Hi!  My name is Jonah” shirt, drove him to the Anderson Center for Autism, dropped him off, and left him to live and attend school there.

I have a good memory for dates, so this was an easy one to remember – aside from the fact that it’s the day Elvis died (35 years ago today).  I woke up this morning with a strange feeling of dread, as though I were going to have to go through the whole thing all over again.

And yet something saved me from turning into the weepy self-pitying woman I, left unchecked, have the tendency to be.

That something was a boy.  And a box.

Someone on Facebook commented on the Scare Me Nots page (I am their facebook “mommy”) – and when I saw the name, I was compelled to look at their page.  The page is for a little toddler who enjoyed 3 months of health before seizures led to a discovery that his little brain is essentially degenerating – and there is nothing they can do.  I wrote to the boy’s mom and asked for her address so I could send her the Scare Me Not she liked.

Then, last night, I spent hours filling and decorating the box, all sides of the box, with pictures from books and magazines and calendars in my crafting basement.  I used a whole roll of packing tape and carefully adorned the box as though it were a gift in and of itself.  The process distracted me from thinking about how I haven’t had my Boo with me for a year.

This mama may not have her little boy at all for much longer.  There’s nothing like perspective to keep you from self-absorption.

When I got to work with the box in my passenger seat, I felt an urgency to get the box to her for her boy.  So I left work and stood in line when the post office opened, and I mailed it the fastest way I could.   Now I feel like I love her boy as well as my own.  I pray for him as I pray for Boo.  And after I mailed that box, I was no longer so worried, so pained, so obsessed with thinking, wishing, complaining, crying about my own boy — and I let go of holding myself bow-string tight.

Instead I felt humbled, and no longer alone in my sadness.  Pain is pain.  Loss is loss.  Everyone has to have some.  None escape grief and trouble.  We all have crosses to bear, some of them terrible.  Unimaginable.

Yet there is a hope we all must hold, that things will get better, that the light at the end of the tunnel is not an oncoming train but rather a beacon of sunshine.

That on the other side there is beauty — and others – even strangers – who really do care.

“All that matters is what we do for each other.”
  ~ Lewis Carroll

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It was crappy, very cold, fine-snowy weather when my mom and I left early this morning to meet Andy at his apartment and then collect Jonah.  The kind of weather where if you just avoid the first few hours of driving in it, you’ll be fine.  Well we were the ones on the road during the slippery beginning of the storm.  My mother wanted to drive us down in her car so that’s what we did.

Nothing can stop her from visiting her grandson.  Nothing.

I believe she’d trudge through a blizzard in boots all 90 miles if she had to.  I was laughing to M about how this would be my death day, walking around the house singing “and when I die…and when I’m gone, there’ll be one child gone in this world, to carry on, to carry on…”

“Stop that,” said M.

But we survived the small storm and got our visit with Jonah.  I brought Fearless Fred, one of my Scare-Me-Nots, down with me.  He wanted to serve and protect us on our slippery way – I imagine because he’s not afraid of anything;  he really is aptly named.

Here are some pictures from our adventures today:

First Jonah got his boots and coat off, and jumped on daddy’s bed.  When he’d calmed down enough to sit, I brought in Fearless Fred.

I handed him to Jonah.  Jonah pulled Fearless Fred’s face in to his own and gave him kisses!

Jonah and Fearless Fred, making friends…

Then it was — you guessed it –bath time!

…and more fun with Fearless Fred

Then lunchtime.  (Fearless Fred tries hard to look busy while stealing a wedge of orange with his tail).

Jonah wanted to take Fearless Fred on our snowy walk.

Then Jonah and Daddy started to run ahead, but Fearless Fred didn’t mind so much.  He wanted to play in the snow,

and hang from branches…

and climb twisty vine-embraced trees.

Show off!

I love my boy so much.  I just want to turn the heated blanket up and crawl into bed.  I have all my adopted Scare-Me-Not “kids” to tend to (only someone as kooky as I could pretend to believe that I mother plush monsters).

No, there is work to do.  And I’m fighting the urge to completely abandon reason, geek out, and send a care package to Guster.

Then again, there’s always tomorrow.

So anyway once again I ask you to make Fearless Fred and his friends go viral by LIKING the Scare-Me-Nots’ facebook page.  I am the cartoon Mommy cyclops monster with dual-lensed glasses, who administers the page and occasionally holds contests with cool prizes.

Should I organize a Scare-Me-Not flash mob?

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Well, it has come.  The avalanche of work and more work, broken up by becoming the Scare-Me-Not mommy (I adopted so many the scaries have absolutely no chance here).

There are two Scare-Me-Nots at Jonah’s house, and they’re never in the toy-box.  They know their duty and understand they must be vigilant at all times.  One of Jonah’s housemates adores Fearless Fred (the red one, saluting) and is clutching it every time I visit.  So I adopted nine good little monsters and had to send my not-so-good ‘little monster’ boo away.

Life is so incredibly strange.

I’m not sure when I’ll be back.  Deadlines are real now, and trainings, and lots and lots to write.   It feels good, and challenging… but it’s time to begin, and I want one more night not to.

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I’m officially the Scare-Me-Not mommy, with several of them now in my care.

This is fun…please visit me on facebook and LIKE the page.  Thank you!

Last weekend wasn’t fun for anyone.  Jonah was aggressive and Andy was sick.  My mom was tired and I was weepy.

But Saturday night M and I got to see Jim Gaffigan, who was so funny I cried laughing the whole time and my stomach hurt afterwards.  I went through a whole pack of mini tissues what with gasping for air and wiping my eyes.  It was awesome.  I needed it.  Thanks, Jim.

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