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There is a fine line between telling my story “sans sugar” and telling too much, or, worse, lacing it with saccharine.  The truth is, the narrator is still not exactly sure where she belongs in this world, if she belongs in it at all – but also that this doesn’t matter.  It’s all about Jonah.

For an only child like me it’s a tough pill to swallow sometimes.  It isn’t at all about me.  And yet, can I be relieved of my role in all of this?  Of course not.  Jonah needs his mama.

Still I sometimes think:  I can’t live this life anymore

And:   What a nice hot day to park the car at the top of the Rhinebeck Bridge — so perfectly inviting for suicidals – no barriers to your leap, yet reminding you every few hundred feet or so that LIFE IS WORTH LIVING.  I know I have mentioned this bridge before.  I’ve always wanted to fly, and that view is so spectacular, and if I ever did come to that fine line and cross it, I think that would be my place to fly-bye

And:  I wonder if other people have places in their minds, like I do.   My place is like the cyanide pill they ostensibly give you when you go up in the space shuttle.  It is a choice you may never have to make but one that’s comfortingly there nonetheless

I still, though, think:  I have to do whatever it takes to ensure Jonah’s health, education, happiness, and nurturing.  I must ensure everything.  Some of that everything is making sure things can stay the way the are, and it looks like things are going to need my help for that to happen

And I berate myself:  You ain’t going nowhere, fool

And I can dance around things that were said this weekend, and all the millions of ways, as usual, in which I was spectacularly weak.  But I’ll post pictures too, for Jonah was mostly good, albeit scattered and frenetic.

It was a sunny day, almost too hot.  A beautiful Saturday, and a good portion of Jonah’s day and mood mirrored that.

Andy was kind enough to drive Jonah up to visit us at my mother’s house.

my mom’s next door neighbors kindly let jonah use their play-set and pool, once it’s opened. jonah asked for “Pool?” a dozen or so times.

At home way at the top, my climber-boo

hey mama!!! hey mama!!!

Eventually he wanted to go see train so we piled in the car, Jonah singing along to the Top-40 Andy’s got on the radio.   We were relieved to see the green light down the tracks meaning a train is coming, so we pulled into a parking lot to wait and watch for it, like we’ve done hundreds and hundreds of times before.

This time, though, he got scared of the train after a few seconds.

This was the last of the pictures for the day.

Out of nowhere he grabbed for my hair.  I know what to do when someone pulls your hair (grab their fist and pull it in toward your head) so it wasn’t a big deal.  Andy got out of the car to let me out of the car, and then Jonah burst into tears, sobbing and upset.  Within minutes, though, he was okay and we were able to say bye bye to the train (thank God it wasn’t a long one) and go back to Grandma’s for another shower.  His beloved train reminded him of how much he misses home?  No.  Don’t invent things inside Jonah’s head, I tell myself.  You’ve got enough troubles inside your own. 

Today M and I went on a long Sunday ride, just like in the olden days when it was deemed neither wrong nor unusual to do so.  When we got home I planted flowers in the God-awful hot for about 13 minutes until I felt I would die.  I thought about Andy, and how unless I am mistaken he is working for somebody today doing some mulching under this same heat, and how under that same sun too my boy probably asked for pool ad infinitum.

Tomorrow I have to go back to producing numbers; here I can produce words.  It’s a fine line, my tightrope.  Sundays are difficult.  And I only took 3rd place in a “query letter” contest I was hoping to win.   And I’m not schooled in query letters.  Looks like I have some work to do.  First place was the opportunity and $500 to self-publish.  

I don’t really want to self-publish anyway.  Isn’t that, after all, what I’m already doing?

Anyway.  Jonah has his daddy close-by.  Today, after all that hot work in the sun, Andy came and got Jonah and kept him for another part of the day.

“He was fine,” Andy told me on the phone. “He had a fun day.”

For me, for now, it is enough.  As usual it is still only early evening and I am bone tired.  I imagine Jonah settling in to sleep.  I miss watching him sleep but imagining it is sweet — I can use memories and visions and dreams.  It is good.

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“And this is why my eyes are closed
It’s just as well for all I’ve seen
And so it goes, and so it goes
And you’re the only one who knows

“So I would choose to be with you
That’s if the choice were mine to make
But you can make decisions too
And you can have this heart to break

And so it goes, and so it goes
And you’re the only one who knows…”

And So it Goes, Billy Joel

The phrase “and so it goes” appears 106 times in Kurt Vonnegut Jr’s book Slaughterhouse Five.   The story continually employs the refrain “so it goes” when death, dying, and mortality occur, as a narrative transition to another subject, and to explain the unexplained. (from wikipedia)

This morning was the first of 5 doctor visits for Boo up here in Albany…and each time he’ll be escorted by his peeps, E & J.  Today we saw Dr. S, the glaucoma doc who is borderline strange but quite efficient, matter of fact, businesslike,  and nonplussed * unaffected by Jonah’s colorful personality. 

The nurses and staff all know us by now and are very kind to Jonah.  When we go there we wait in the hallway outside so Jonah can pace around, and they come out to get us when doc is ready.  In the meantime Jonah frolics in the hallway, crouching and running and shouting happily.  He loves E & J.   I love them too.

J put gloves on Jonah, and they played high five and gimme the pound, bumping fists.  Jonah’s getting to be such a good boy at his doctor appointments.  He is brave and sweet and funny.  Even if I’m under some sort of mother-spell skewing my perception completely, it feels good to have seen him, all lovey and silly.  Precious Boo.

He’ll need another eye operation; they want to take the Reticert implant out.  It’s been there 2 1/2 years now and Dr. S wants it out soon, so Jonah will have another appointment with Dr. S, but first an appointment at the pediatric rheumatologist, a pre-op appointment at the eye surgeons, then the surgery itself, then follow up appointments, etc.  Can you imagine if I didn’t have E & J?  Andy or I would have to pick him up and drop him back off every time.  The transportation to and from doctor appointments, paired with two individuals like J & E, is an invaluable service and responsibility.  I have no idea how they do it.  Thank God they do.

You probably can’t tell, but he’s laughing his head off here, wearing his exam gloves and knocking on the door three times, shouting “knock knock knock!” each time.  Little peanut butter, E calls him. He wanted me to give him noogie and knock knock knock lightly on his noggin, silly with giggles and ready for mischief.  Wan go van? he’d ask J on occasion, and J would distract him with lists of delicious things to eat:  french fries!  pizza!  bleu cheese! circle pepperoni

When it was time to go I kissed Jonah soundly as he settled into his cushion-y nest they’d made for him in the back of the van.  I entrust him to others. 

I have to, but with E & J, I am actually glad to. 

* I believe that most people misuse the word “nonplussed” – including me.  I always thought it meant “unfazed.”  Turns out it means exactly the opposite.  

So it goes.



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I celebrated my Mother’s Day yesterday with my mom and Jonah and Jonah’s dad Andy.  We didn’t do anything particularly special, except Jonah (read Andy) got me a lovely basket with candles and soap and lollipops in it.

Jonah (read my mother) also got me a gift card to TGIFriday’s, and a yummy box of chocolates.  And Jonah (read M) got me a beautiful jewelry armoire, and Jonah (my little “adopted daughter J” from four Winds) sent me a dozen roses!

My dad sent me a simple, beautiful card that touched my heart.  Friends are texting me, e-mailing me:  Happy Mother’s Day!

Jonah sure is generous, through the hearts of so many who wanted to give him the voice to tell me he loves me, on this first Mother’s Day without him.  Thank you, little Boo and all who speak on your behalf.  I love you so.  I do not want to tell you how I cried bitterly into my pillow this morning, feeling sorry for myself because my only child is far away from me.  So I will tell you instead how grateful I am to have my beautiful boo, my sweet precious boy.  I will tell you it is not even noon and I have wiped my tears and planted seeds in my garden — morning glory seeds to climb and wrap themselves around things.  Soon I will go outside and play more in the earth and dirt, turning over soil and, without getting all weird about it, allow the sun and earth to mother me.

Yesterday was also a beautiful day for Boo to enjoy – we did all Jonah’s favorite things & haunted all his familiar spots:

Sipping on some strawberry milk…in the tub

Swinging high on his favorite swing. Luckily, no one else has ever been on it when we’ve gone to the park!  There’d be trouble…

Looking longingly at the Hudson River. He’d get naked, jump in, and swim around for a long while if we let him…it was 84 degrees, too…

More longing for the water…

He finally leaned so far off the dock that he could swish his hands in the water…

…but daddy was right there. I think if they fell in Jonah would be rescuing Andy!

…and of course among the pansies Valiant Valerie whispers “Happy Mother’s Day!” to me, her adopted mommy…and to my own mom – to all mothers and not-mothers everywhere…to those who wish they could be mothers, and to mothers who have lost children…to those who have chosen not to have children, and to those who have made adoption plans for children they could not care for….for all the mothers crying today, for all the mothers laughing today…for all the children and adults who have lost their own mothers…

Have a happy, blessed day anyway, everyone.

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Today Jonah was a little lover, if a bit screechy and semi-hysterical.  I guess the usual.  Only one small glasses-snatching hair-pulling incident, but Andy pulled over and got him off me.  “Daddy in backseat?” asks Jonah incessantly, but neither my mom nor I can drive Andy’s stick-shift car so Jonah’s gotta choose between grandma or momma to have in the backseat with him.  “Momma in backseat?”  he decides in the form of a question.

He requested “Noogie?” right away.  I guess that’s how you spell it – when you rub your fist into someone’s head.  He loves playing knock knock knock on his head too, and though it had fallen out of fashion, his new gimme-the-pound (where you bump your fists together) has brought back the memory of his sensory-input fiesta.

Speaking of Fiestas, it is Cinco de mayo.  “Say cinco de mayo,” I told Jonah.

“Cinco tomorrow,” he answered with his big grin, shaking the maracas I’d brought him.  The pictures tell the story, a good one today, thank God:

(Watchdog Wally’s holding the maraca)

He’s shaking the maracas so fast that the one is blurry…

My big Boo, watching his beloved water…

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To the best of my knowledge Jonah has been a very good, happy boy for the past 5 days or so.  Why?  Nice spring days again.  Playing outside, swinging high in the sunshine.  The right dosage of meds finally.  Divine intervention.  Right now I don’t care.

Yesterday when we sent to see Jonah he was a very good, happy boy – and we did the usual things but he was having so much fun, laughing and singing, giggling and lovey.  I took a few great pictures that capture his joy, and the feel of the day…

My mom drops me off after the visit and we look at one another:  my long, bony hand holds her long, bony hand — and we say, sometimes in tandem, “Thank God.”  I remind myself not to hope.  Wait, that’s not quite right.  Always there is hope inside me.

It’s more like the expectation of permanence I need to dissolve.  I am so grateful.  Now.  Now.  I am grateful now.  Stay in this place, Amy.  It’s the only place to be, really.  Anything else is an illusion, the voice inside tells me.

“You must live in the present, launch yourself on every wave, find your eternity in each moment. Fools stand on their island opportunities and look toward another land. There is no other land, there is no other life but this.”

~ Henry David Thoreau

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and also with you

When I was 25 I applied for a job as parish secretary at St. Francis de Sales Church.  The pastor was Father David E. Noone, and the staff hired me while he was away in China.  He came back to the church, and to a new secretary.  We clicked and hit it off right away, and my years there were so valuable.  Father is a wonderful person in too many ways to get into here, but suffice it to say I’ve always looked up to and admired him.

As of April 20, he’s retired.  And not just retired, but moved to the (gasp) South. Ugh.

My father and I went to his last Mass, the Sunday after Easter.  I elbowed and excused my way into Father Noone’s communion line.  I’ll be damned (pardon the phrase) if I was going to take communion from some layperson Eucharistic Minister – this day, this last Mass, I wanted to take communion from him.  (I have no business taking communion at all, really, but I like it and I take it and I think God is okay with that).  And so I did.  There was a moment when Father and I locked eyes, and it was one of those rare real moments.  A grace-filled moment of understanding, with a little mourning, and pure Christian love.

Father Noone married Andy-and-me (inside joke to the one who’ll “get” that), and he baptized Boo; I remember Jonah pitching a fit and fidgeting through the whole baptism Mass – until Father Noone poured the holy water on his head.  Then he was fine, for a while.

Jonah’s first water fun! 

I was the one who cried.  I remember feeling incredibly moved…the baptism sacrament is so sacred and beautiful, and Father Noone made it special.  I’ve come to appreciate Mass again, though I became a Father-Noone-Catholic, if you know what I mean.  You’d have to find me another priest like him, and you’d have a big challenge ahead of you if you tried.

So the other thing is they went and changed parts of the Mass.  If you haven’t been to church in a while, all ye Christmas and Easter Catholics, be warned.  You don’t even get to say “and also with you” – which was one of my favorite parts.  I said “and also with you” anyway, even though they’d put the new follow-along words up on a screen for the changed parts.  So that was a little strange.

St. Francis de Sales isn’t St. Francis de Sales anymore, either – two parishes merged into the St. Francis de Sales building/church, and they renamed the church Christ Our Light.   Sounds more Protestant than Catholic, not that there’s anything wrong with that.   So Father met the challenge of merging two parishes with aplomb, and led his new flock well.  He’s the kind of a humble shepherd who never holds himself above you, and he’s got this great, slightly irreverent, sense of humor.  I’m going to miss him.

I’m avoiding writing of Jonah.  He has not made it through many days at all lately without behavioral managements (the take downs) where he becomes suddenly and out-of-the-blue aggressive, biting and kicking and scratching oh my.

This blog is a record on skip.  They can’t mess with his meds right yet because he’s  going to be starting a new med to treat his juvenile arthritis.  And then they need to watch to see if the meds help alleviate the pressure in his left eye from the glaucoma.  And then they’re going to want to remove the implant in the eye, the one they put in two and a half years ago.

So I feel awful when they call of course and for countless reasons.  There isn’t anything to say.  No questions, your honor.

We can’t find a pattern, though we’ve been trying since he was six or so.  Maybe before that.   I can’t help imagining Boo in pain.  Some kind of pain.  And then trying not to imagine it.  Or wanting to fix it, and not knowing how.  Lots and lots of theories and not much proven, or else we’d all be on board.  Right?  I have no idea.  I really don’t.   I remember Dr. Reider’s wise words:  “Correlation does not necessarily imply causation.”  I doubt, and look for evidence.   Do I sound over-proud? – look where it’s got me.

I just want my kid to be at peace inside.

Peace be with Boo.  And also with you.

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Yesterday’s visit with Jonah was awesome!

We all expected him to be thrown off by his temporary move, just the night before, to a different house for 4 or 5 months while Birch House is renovated.  But the caregivers know how to prepare the kids.  Staff took the children to the new house lots and explained over and over again about the move.

But you never know what’ll set Jonah off, and this kind of change seemed likely to have made him angry.

To be honest I really didn’t want to drive down at all.  After losing Sugar and spending a couple days in an “off” place myself, I hesitated to risk another bad Saturday, another violent visit.   My mom would have gone anyway; nothing keeps her from seeing Jonah, but she’s more selfless than I.  In the end I went with her;  I missed Boo awful too.  Plus, it was such beautiful weather so I decided to spin the wheel and hope it landed on GOOD DAY.

It did.  Jonah was happy and excited.  He and I sat in the back of the car on the way to Andy’s apartment, and he sang with me, played with his hands, and looked up front at daddy and grandma.

But he didn’t ask for “daddy in backseat” like usual.  He was content with mama.

We played where is thumbkin and I taught him how to be The Fonz.

Aaaayyyy!

Jonah wanted to kiss me lots.

He’s got this little game he plays where he asks “kiss?  kiss?”  and we move our faces in slowly toward one another until, at the very last moment, he smiles and I end up kissing his teeth.

“Yuck!”  I say with an exaggerated icky-face, which sends Jonah into hysterical giggles.

“Kiss?  Kiss?”  he asks again.  “Oh—kay”, I say slowly, “but only if it’s a real kiss.”  So he arranges his face into mock-seriousness  as we prepare to move in for our kiss but he just can’t help it — the sides of his mouth twitch in suppressed laughter and he and I both start giggling.

Of course everybody gets his or her share of “huck?  huck?” and real kisses too.  Hugs and kisses, bath, park, turkey sandwiches, black soda, Hudson-River-by-the-train-station:

Then holding daddy’s hand and walking back down to see Grandma again…

In the car he wanted “more kisses?” and it made my heart fill up with something usually not present anymore.

“Kiss hand?” he asked, holding his arm out –so I took his little hand and kissed it.

“Kiss cheek?”  he wanted next, so I leaned over and soundly kissed his soft-child cheek.

“Kiss quiet?” he then said, holding out his pointer finger.  I took his finger to my lips and kissed it, tilting my head at him inquiringly. 

Kiss quiet?

He held the finger up to his lips:  “sshhhh.”

Oh!  “Yes, Boo,” I whispered, smiling, admiring the clever way his mind constructs language, the way he is a new kind of lexicographer.  “Kiss quiet.”

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and she slept

In the Spring of 1999, Andy and I lived on the 3rd floor of a downtown Albany brownstone apartment building – before marriage, before Jonah, before either of us had turned 30.  One warm day, we opened the window and heard loud howling-meows in the alley below.   When we investigated we found a half-starved alley cat, ribs standing out from her fur, crying a desperate, determined call.  To this day I think she was calling me – the queen sucker for strays.   She ran over to rub herself on and around my legs.    Of course we took her in, Andy and I, and for a week or so she mostly just sat in the middle of our woven living room rug, still and silent, as if in shock.

Soon, she grew to like living with us – having food and care, warmth and safety.  She rounded out into a small but well-fed cat, and seemed so grateful – she never missed an opportunity to show us.    We took her to an awesome vet who guess-timated her to be 2 or 3 years old.  She wasn’t a pretty cat, but oh how she loved.  She was the sweetest thing, climbing in my lap and rubbing her furry face against mine.  Leaning into me, sleeping in Andy’s hair (really), purring at our touch.  We named her Sugar — not for her coloring but for her super-sweet disposition.

I’ve had my share of cat companions in my day, but Sugar’s been the sweetest, paws down.

When Jonah was born, Sugar took to sleeping in his crib.  By the time Jonah actually slept in the crib, he was 5 months old, and Sugar wanted to stay.  So together they slept.  We watched and, at first, worried, but they were just fine.  Jonah could roll over onto Sugar or pull her tail and Sugar stayed calm or got away.

What Sugar wanted more than anything in this world was attention.  She gladly sat in my lap for hours to be brushed or petted, purring loud and occasionally lifting her tiny face to mine for a kiss.   Her ideal companion, really, would have been an 80-year-old woman who’d gladly overindulge a needy cat in exchange for the kind of devotion Sugar loved to give.  I love you I love you Feed Me I love you was Sugar’s purr-mantra.  (She puked more often than we liked, but we  overlooked that stubbornly unfixable flaw).  Jonah and Sugar mostly peacefully co-existed.

But once Jonah started to get behaviorally aggressive, we knew Sugar needed a safer place to live, so my mother took her in, kindly giving her love and care.  Whenever I visited my mother I paid a special visit to Sugar too, holding the cat close in my arms and setting her down gently to pet her and listen to her rolling purr.  She came running at my voice, which I always thought was cool.  She knows her mama.

A month or so ago, though,  Sugar got sores on her belly.  We found out she needed surgery and I gladly paid for it.   After all, my mom and I thought, Sugar still ate well, jumped up on the bed, walked fine, and all her body functions were working.   Neither mom nor I could bring ourselves NOT to do the surgery.  After the operation, Sugar seemed to be doing well and healing okay, but these past few days she grew weaker.  She started limping and then she just sat in the litter box.  My mom tried to hand-feed her but she would only eat a tiny bit.  This morning, when she lifted Sugar into her arms, Sugar peed all over her.

So my mother decided Sugar had been through enough.  I called Andy to tell him, and he said he understood and was sorry.  My mother picked me up at work and I held my 4-pound cat in a blanket on my lap as we drove in silence to the vet.  I closed my eyes and ran my fingertips through her fur, along her sharp spine, my tears falling freely on her tiny head, like a baptism in reverse.  An anointing of the sick.

Sugar purred softly in my arms as we took her to that same compassionate doctor who first examined her 13 years ago.

I pet her as she was laid on a soft blanket and given first an injection to make her groggy.  The doc left the room for a minute as we said goodbye.   I love you, Sugarpuss, I whispered in her ear, kissing her one last time.  I silently asked Gina to come get her, please, and God strike me down if I’m lying just then a Paul Simon song from our favorite album came on the very-low-volume piped-in music in the room, and I knew it was her way of telling me she’d be there to show my cat around heaven.

When the doc came back, she gently asked if we wanted to stay in the room.  I knew my mom didn’t want to, but I did, so mom bravely stood by me; softly we spoke in whispers to our old, sweet, tiny runt of a calico cat.   “It’s okay, baby,” I  told her.  “It’s okay to go.”   The doc took her time to carefully search and find a good vein.  She inserted a needle and slowly injected Sugar with whatever drug will euthanize a cat.

“God’s finger touched her, and she slept.”  ~ Alfred, Lord Tennyson

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There is something almost routine, now, about kissing my son goodbye after a visit or a doctor appointment.  But sometimes I step back unwittingly from that routine and kissing my son goodbye comes with a horror that feels like the day we said goodbye for that first awful time at the school. 

My mind is pretty good at erasing or dumping some memories and then it refuses to get rid of others;  I will never be able to escape the memory of kissing my son goodbye that day.  I don’t think I’ve ever held my breath for longer than when they led him away, out the door, down the hall.  Gone. 

When Andy and Jonah left today it felt like that.  I had a difficult time listening to what the doctor was saying and absorbing it all.  I gave her the direct number of Jonah’s nurse at school and I wrote down a lot of information before I left, though.  The conversation helped to snap me out of longing to run after Jonah and snatch him up into my arms.

For a while I have needed to go out in an empty field somewhere and scream my head off.  Really scream. 

It sits inside me, that scream.

World Autism Day.  Light it up Blue.  Good.  Make them aware.  Research, figure this out.  Please and thank you.

Today the doctor was a pediatric rheumatologist who is only in Albany two times a week.

Remember when we had to drive all the way to Boston Children’s Hospital?

There was a rumor that she had a practice in Red Hook, close to Boo, but no one could confirm this.   So E took matters into her own hands and found out this doctor lives in Rhinebeck (which also is near where Jonah lives).  E tracked her down and called her home phone to ask her does she have a practice in Red Hook or not?  

(E is badass.  I told you so.  She gets shit done).  But the doc’s got no practice in Red Hook.  

So today Jonah, in honor of World Autism Day, got his official diagnosis of JRA (Juvenile Rheumatoid Arthritis).   Now I am becoming acquainted with yet another disorder/disease.  There are several kinds of JRA, and Jonah’s is called Pauciarticular Onset JRA – the most common form of JRA.  Of the three JRA subtypes, (reads the brochure) children with pauciarticular have the highest risk for getting chronic eye inflammation called uveitis.   So it is piecing together, albeit slowly.  Next Tuesday we’re going back to Dr. Simmons again to see what now.  I’m researching Methotrexate, the drug they’re thinking of recommending.

As I typed this CNN e-mailed and asked me if I’d like to write some more, so I said yes of course, in honor of World Autism Month.  My favorite pressure, the pressure to write.  I guess because it doesn’t feel like pressure at all, the writing.  But as before I have no given theme or direction — they’re entrusting that to me — so I’ll kind of be winging it.  I am honored just to be asked.

Here are some pics of Jonah from the doctor’s office today – I love taking pics of Boo!

First he was happy.  “What color are the flowers, Boo?  Let’s count them!  1…2…3…4…”

Then he got antsy and needed to walk the hallways.  Black kitty he said, pointing. (I think it was actually an owl.)

Luckily we were at the end of a hallway with a big window.  He visited here quite a few times.  It makes you wish you had one of those passes you get if you take your kid w/autism to Disney.  They go first.  No waiting.  Seems like implementing this at the doctor’s would be a really good idea.

I have to say though, she was very cool, this doc.  We’ve been fortunate to have caring doctors for Boo.  A doctor even took the time to help me find where to go when I’d gotten lost.  Thank you, Dr. D.

“Grab a hold
Take these melodies with your hands
Write a song to sing
Isn’t such a bad, bad world

And I say these times are strange
I can feel it in the night
I’m standing in the dark
Holding up for the light

And here I’ll remain
‘Til the great sun shines
Standing in the dark
Waiting up for the light…”

~ Guster, Bad Bad World

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This past Saturday was okay for a while and then it really wasn’t okay at all.  Part of it was my mental state, which went all to hell on Friday.  But here are a bunch of cool pictures.

Knockout Ned came along.

Jonah put his harness on to get into the car…

Swinging at the park

Looking at “whiteduck.”

…but then in the car he pulled my hair hard, grabbed and bent my glasses, and kicked me in the head.  My mother kept saying “let me get in the back with him.”

I’m not sure if she thought (A) He wouldn’t attack her or (B) She wouldn’t mind it if he did and (C) She certainly wouldn’t be the melodramatic weakling her daughter turns into, crying and sad because she sees her son for 2 hours a week and wants it to be a good 2 hours, a happy 2 hours…

She actually was extremely angry at me for this and not a word was spoken between us on the ride back.

“All I can say,” she declared disgustedly, once we’d arrived home, “is God help Jonah.”

I was pissed at her implication, but I can get behind what she said.  I have never done right by her beloved grandson and I never will.  This I must accept as her perception, one she has a right to, one I mustn’t do much more with than acknowledge.  Thank God I am not so young anymore.  I am learning.  Slowly…but I am learning when silence, forgiveness, and self-examination are best.

Off to another doctor appointment tomorrow, to the rheumatologist again.  Andy’s bringing him up this time.

God help Jonah.

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