Feeds:
Posts
Comments

Posts Tagged ‘singing’

IMG_20150527_153117207 Remember when I said I was going to get through the winter  without using lights and my thermostat set as low as I could safely manage it?  Well, damnit, I did it.  And now, for further fun and self-flagellation, I’m attempting to go all summer without putting the A/C unit in the window.  It was 82 degrees in my house yesterday.

It all involves very little clothing, drapes closed, and a big fan.

I have a pleasantly cool, finished basement where my two new kitties and I can escape (Almanzo never returned, and I waited until my heart was ready to take in another animal companion).  The cats are 3 years old and had been surrendered at the Mohawk-Hudson Humane Society a week before.  I didn’t really want two, but they are sisters and I didn’t want to separate them.  I’ve named them Laura Bess and Gracie – after guess who?

They are very nearly identical….white with graffiti-sprayed gray atop their heads.  I put a collar on Gracie just to tell them apart, though Gracie’s bigger and usually now I can tell who is who.

IMG_20150527_075220869

Laura Ingalls Wilder was a little thing, after all — just 4’11”.

And what of Boo?  He is himself.  He is navigating his world the best he can, and we along with him.  A sudden, explosive outburst at his father – when Andy told me on the phone, I nearly threw up.   Jonah attacking him, causing scratches, bruises, bleeding.  Chunks of hair pulled out.   I wasn’t there and I don’t even know exactly what happened, but I’ve seen it all enough to imagine…

…and I don’t want to imagine and I never want to have that happen to anyone again and there isn’t a damn thing any of us can do about it.

I spend a lot of time in the woods.  A lot of time alone.

IMG_20150522_111859713

IMG_20150525_145419337

I remain afraid of my son.  I’d love to watch him swim, watch him sleep again.  I never get to watch him sleep.  Strange, the pieces of my mama-life I miss the most.  Small memories.  Momentpieces.

Everything is as it is.  I am beginning a meditation practice with Tim, daily, though he is in Indiana and I here.  I have lost my practice and need to regain the refreshing supply of mindfulness which comes from sitting in silence and outside of time.   Most recently we visited for nearly 2 1/2 weeks together both in Bloomington, Indiana (where he lives) and San Diego, California (where he is from, and where we stayed – where I got to meet his mom and her husband, Chris).  Here are some photos, of us — and of course, of Boo.

Love on the Pacific Coast

Love on the Pacific Coast

IMG_20150509_185809285

IMG_20150507_065953433

putting on his socks and shoes

putting on his socks and shoes

happy on car-ride

And much silliness:

IMG_20150523_093612713

IMG_20150523_093616411

“The best things in life are silly.”

~ Scott Adams

Read Full Post »

Happy boy is still with us – only a few attacks here and there, none of which I’ve witnessed, at least not in quite a few days now.  Maybe even a week.  We took Jonah to a new pediatrician on Monday – one who specializes in developmental disabilities and behavioral problems.  I loved him; he’s level-headed, kind, and intelligent.  If we want Jonah to have his second chicken pox shot or the flu shot we’ll have to go back, but we might opt out of both of them this year.

We’re putting the wheels in motion to go to Boston to see a pediatric rheumatologist (there aren’t any around here and the ones for adults won’t even see children, for some reason) because of Jonah’s uveitis and iritis, and the synovitis they found some time ago in his hip and jaw.  He may have pediatric arthritis, they’re thinking, so that’s our next big medical project to tackle.

Also on the Jonah horizon is a big meeting tomorrow with the school district officials – teachers from Wildwood will be there, and his caseworker from Catholic Charities, and of course Andy and me, and we’ll try to decide what’s the best course of action educationally and placement-wise for Jonah.  I know we have to at least investigate our options but now that he’s so much better I want to keep him home and at Wildwood School.  They say he’s participating more and yesterday he had no aggressions at school at all – granted it was a half day, but still…he came home with math sheets all completed (it still baffles me that the kid can solve math problems) and a hastily scribbled art project (he’s not the biggest fan of coloring, though he does love to carry markers and colored pencils around, & roll them on the table and floor).  He still falls asleep early but he sleeps well, and peacefully, and I am grateful for every day he is himself again.

I love to see him skip around…hear him happy, even loud, again – lately he has been singing and shouting out the “hear-ar-ar-ar-ah-art” part to Guster’s “This is How it Feels to Have a Broken Heart” (which, despite its title, is actually kind of a lively song).

“We’ve colored in the lines and followed all the signs
Fought a war till the war was over;
Said you’d never be the kind with an ordinary life…

~ Guster

(You can say that again, guys)

Read Full Post »