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Archive for the ‘doctor’ Category

Resentment: Def. A feeling of indignant displeasure or persistent ill will at something regarded as a wrong, insult, or injury – real or imagined.

Andy has brought Jonah to three post-op doctor appointments this week.  God knows what would happen if he did not live where he does and have the job(s) he does.  E and J have been unable to bring him to his last 4 appointments.  What does the school do if there is a child who needs an eye surgery and doesn’t have the transportation to get there?

The laser surgery was medically successful, at least initially, but I had to take the whole day off Monday because everything happened excruciatingly slowly.

This video shows Jonah, gowned up and ready to go, stuck in a room Does he like Dora? the nurse kindly asked and we said yes and we said sure and we said thank you when all we wanted was to get going. Andy is standing between Jonah and me as Jonah walked his circles in the small space of the room.

Five minutes after this Jonah had a major flip out, throwing himself on the floor in the hallway, kicking, screaming, pulling hair, biting.  Nobody came out to help us.

Eventually we got him back to the room and calm.

O

The operation itself was quick.  Jonah got sick afterwards and kept wanting to itch his eye.  so I used a tissue to gently press on the eye, and I kissed it soundly, over and over.  Kiss eye?  Kiss eye?  Yes, Boo.  Kiss eye.  Of course kiss eye.

O

It was more difficult than usual to send him back to school, an hour and a half away from me, where I see him so infrequently and have so little control over what happens to him.  I have to trust.  One of the check-in people on eye operation day noted that Jonah was at a residential facility.  She mentioned that her daughter was autistic and how she would never, ever trust anyone to take her precious baby away from her.  “I don’t trust nobody with my baby,” she declared.   It was as if she had slapped me in the face.  Who says that to someone whose kid is already in a residential facility?  What do you know about why we did it?  I wanted to yell.

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Jonah & Andy, walking the halls before the room where you gown up.

– – –

And so I crawl along, filled with dread, with grief and terror for this world, with my heart broken for those at Sandy Hook in CT.  I read all the intelligent arguments about mental illness, parenting, gun control, and violent games/TV, and I find no answer in my heart — and that, maybe, is what frightens me most.  My mental state becomes fragile when I am confronted by humanity at its worst.

Which did not help when very recently I was the target of verbal anger, delivered in front of others and with a ramped-up rage that left me in disbelief, filled with embarrassment, and completely stunned. Despite a nonverbal apology later for the “confusion,” (not the behavior), I think maybe too many people enjoy railroading over people like me, who don’t fight back.  One witness, upon seeing my face fall, told me coldly to “suck it up.”  Maybe I really don’t belong in society, such as it is, because that kind of behavior seems so foreign to me that I have no response but tears.  It will pass, it always does, I regain the strength and something restores my faith and I keep on going.

Yet there is a lot that’s wrong with all the people in this world.  With our priorities and with our ignorance and with our anger.  All of us.  There are a lot of things one can say about me but I will say this for myself:  I may be meek, but I am kind, and I don’t take advantage of people’s weaknesses or vulnerabilities, and I care about how other people feel, and I have never treated anyone the way I was treated today.  So perhaps people like me really shall inherit the earth, like the Bible says.  Watch out then, bullies, because things are gonna get a whole lot more mellow. (Quite rightly).

If I were a Buddhist all of this would play out in my head and heart quite differently.  I would be thankful to this person for their challenge to my ability to be compassionate and understanding.  I would consider them my teacher.  I would not only forgive instantly but also revere the perpetrator – very similar to Jesus’ “turn the other cheek.” That’s some serious shit to truly take on, though, which makes me admire earnestly practicing Buddhists and Christians all the more.  Perhaps I should just up and go to Plum Village for a while.  I need to pound the lessons into my head.

Of course this whole story – every little bit of it – is nothing compared to what has happened and continues to happen in Newtown, CT.  Burials, burials.  An entire community with post-traumatic stress disorder.  Pain-filled awakenings from nightmare hours of darkness.  God only knows the horror.  God help all the mourning people. I just can’t muster much joy in Christmas this year;  I have had the wind knocked out of me and am only a stranger, miles away.  But I can pretend, and the pretending will become real.  Smiling begets smiling.  Breathing allows for release.

Hope.

At least I am still able to crawl along.  To let go of the resentment.  Breathe, breathe.  Let it go… Feel gratitude.

I’m a Weeble, you see.  I wobble, but I don’t fall down.

Weebles just, well, rock on.

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“Rich man can ride and the hobo he can drown
But I thank the Lord for the people I have found;
I thank the Lord for the people I have found

While Mona Lisas and Mad Hatters
Sons of bankers, sons of lawyers
Turn around and say good morning to the night
For unless they see the sky…
But they can’t and that is why
They know not if it’s dark outside or light.”

~ Mona Lisas and Mad Hatters, Elton John

I have not felt like writing.
I’ve been playing online poker and sending out (mostly Christmas) cards,
playing with stickers & markers like a kid
listening to (new to me) old music from the early 70s
(Genesis and Elton John, their really old stuff…)
I’ve been staying up way later than I used to
and trying to unravel the sticky red tape of Medicaid
and trusting it shall be unraveled, soon & successfully.
I’ve been dreaming of the Pacific sun over the Big Island
and not thinking about Jonah’s (4th) eye operation on Monday.

Perhaps some pictures. I’m just so very tired.

O

He looks like a pissed off mini-Beatle in this photo.  And, more and more I think, in pictures you can tell his left eye looks so different from his right eye.  Evidently he has just had a haircut, and S, one of his direct care workers, says he is muy bonito.  (She speaks Spanish and if I had kept up with my Rosetta Stone, so would I).  I can’t wait to see him on Saturday.  I couldn’t go last week because I had the kind of migraine where you puke 8 or 10 times and lay there in the bed in between, twisting and pushing your face into the pillow to seek comfort, cushion, relief.  Anything, anything.  I was so desperate.  I’d never hold up under torture.

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Jonah is high-fiving E, one of the kick-ass caregivers; she keeps track of all his records and she advocates, smiles, hugs, and is generally awesome.  Plus she and J drive him to and from many doctor appointments.    Here they are at Jonah’s recent glaucoma doc.

I took this (nothing really happens) video sitting next to Jonah in the backseat of car ride.  You can see how all around his lips are chapped (we took care of that in a few days with some Burt’s Bees) and he is rhythmically rocking to some Top-40 song Andy has on the radio she said disdainfully.  I like when he gets all smiley and turns toward the window.  By the end he reminds me of Carl from Slingblade.

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Manzo likes to be inside boxes and bags.  The bag is appropriately from the World Wildlife Foundation. <– Just as I typed that M opened the door to let Jack out and Manzo scooted out as well, jumping the fence into our next door neighbor’s yard immediately.  I am trying not to panic because I know we can’t catch him if he doesn’t want to be caught, and it’s cold out so he should come back in.

Damn it though.

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Dear Boo,

Mama is so sorry, sweet angel, but it looks like you are going to need another eye surgery, and soon.  See, the one they would normally do requires the patient to avoid touching the eye for two weeks, and we know you can’t do that, and we can’t explain it to you, so we have to try something else, and these laser eye surgeries are the something else.

This might not even be the last surgery.  The surgeries aren’t helping so far, and what we’re trying to do is make sure you can continue to see.

People with autism are usually visual learners, and you seem to be one as well.  Thinking in Pictures by Temple Grandin explains this somewhat, and if you could read it I would give it to you and see if you agree.  I don’t really even know if you can read.  They talk about the sight words you know, but even illiterate people know what the STOP sign says.  I don’t know if it matters that you can read, even.  Sometimes I wish you understood more and sometimes I am grateful for your ignorance and innocence.

Have the eye appointments and surgeries become part of your normal?  I guess they must be, by now.  You tip your head back for the eye drops like an expert and read the eye chart like a brave little man.  You are as patient and tolerant of the neurotypical people around you as you can be.  I have no idea how difficult it is, to be surrounded by people who do not understand you.

I’m so sorry, sweetheart.  Mama and daddy are doing their best to make sure you are not in pain, that you have eyes that are healthy, a strong little body, and a calm, peaceful, happy mind.  I’m sorry you don’t have many of those things and I’m sorry there isn’t anything I can do but trust and pray and hope.  I can research, and listen to my instincts.  Hold you close for as long as you’ll let me.  Breathe you in.

You amaze me, Jonah Russell.  Daddy and I will do the best we can for you, for as long as we live.

Mama promises.

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Yesterday was Harvest Fest at Jonah’s school.

I did something very similar to my dorm room door, junior in college – only we glued real leaves to the wall…

We visited his classroom and spoke to his teacher, who gave us a folder full of Jonah’s work sheets and art, then told us Jonah has good days and bad days, which is teacher-euphemism-talk for he’s really difficult, randomly, and it’s frustrating. He is one of the most verbal kids in the class, so they don’t use PECS with him anymore.  I guess Jonah has a vocabulary of sight words and he really loves occupational therapy.  His teacher is young, pretty, and interested, with a sharp mind for noticing important things and a kind heart to care about the children.

There are teacher’s aides as well in the class, and occupational/behavioral therapists, and art/music teachers, and they all work together to educate these mysterious children like my Boo.  Amazing.

What a beautiful day, too, sunny and warm and autumn-pretty – after visiting the school, we walked to Jonah’s house and then to the recreation center, where they had bouncy bounces set up, grills cooking up yummy food, and activities for the kids.  We waded through the groups of kids and teachers until we found Boo.

They’d actually managed to get him to wear this headband with two curled black pipe cleaners and red leaves on the end of each one.  He used to hate stuff on his head — hats, hoods, Halloween costume accessories.  When or why or how this changed, I have no idea.  In some ways Jonah is very malleable; he morphs almost magically into a different kid, one little corner of his brain making seemingly arbitrary decisions in matters of head coverings and food preferences, who he requests to be with him in the backseat, what he wants to drink:  appoo ci-der?  milk?  cranbewwy soda?

When we caught sight of him, he was standing next to one of the picnic tables and seemed to be doing okay, but as soon as he saw us, he wanted out.  And so he got a bear hug from Pa (my dad) and then my mom and Andy and I brought him to Andy’s apartment.

Jonah’s newly renovated house – Jonah’s window overlooks the playground behind it, and the pool behind that.

Jonah leads the way to the car.

Jonah being silly as his dad helps him with the car harness

When we’d completed our usual tour of bath, lunch, and car ride, Jonah requested the “grow-shee-store?” At the self-checkout lane Jonah started screaming in what I can only describe as “obnoxious joy.”  I told Andy to go ahead and take him out while I weathered the stares (usually Andy’s privilege) and paid for the food.

And after we’d been back at the apartment for a while, my mom and I left.  My car drove us home okay, but when I tried to run to the grocery store later in the day, the steering wheel was shaking and the car pulled heavily to the right.  I guess tomorrow I’ll have to drive it (gingerly) to the shop by my work and leave them a note with the keys.  Sigh.

I was just thinking:  It has been a long time since I cried over leaving Jonah behind each week.  I don’t know what that means, if it means anything at all.

I will also tell you this little not-about-Jonah story:

With my favorite pastor ever (the recently retired Father Noone) I’m joining a committee to support a school being built in Fontaine, Haiti.  Father went to Haiti and helped cut the ribbon on the opening of the first three grades.  The money needed to build the school (and, before that, a well) was in large part funded by special collections at the church from which Father Noone retired.  And now, that same church has explained to Father that, due to financial challenges, they will be unable to continue to support the Haiti project except for a second collection twice a year (or something equally lame).

Disappointment at this decision aside, I am helping Father Noone raise the money needed to keep the 105 students there for another year.  It’s just $300 per child.  That’s $25 a month for a year.  Or, as the commercials like say, “for just pennies a day” — but it really is true.  Hell, you could spend $300 just buying school clothes and supplies here in the states.

These are children who would otherwise have to walk 4 miles a day round-trip to school in another town – in a country whose villages have no electricity nearly three years after the 2010 earthquake.  Unimaginable.  Try to picture that happening here, how enraged we would all be.  Hell, I remember an ice storm some years ago and being frustrated at its four day interruption of my normalcy.

Anyway, if you can help (in any amount), please click on the link and donate from there.  If not, I’ll never know.  I wouldn’t judge even if I did.  Every cause wants money.  I just want to help Father and this school he believes in as much as I can.  This quote by a wonderful author (who had to write under a male pen name to get published) describes Father Noone perfectly —

“In spite of his mildness and timidity in reproving, every one about him knew that on the exceptional occasions when he chose, he was absolute. He never, indeed, chose to be absolute except on someone else’s behalf.”
George Eliot, Middlemarch: A Study of Provincial Life

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kiss eye

Thank you all for lifting me up with love and light and prayer.  I know I am biased but my boo really is so brave and amazing.  Jonah was great on Monday for his eye operation, even though we all had to be there at 6am, and I was very proud of him (after I stopped being nervous – when it was all over).

the way he sits and holds his body and arms/hands is very much like his mama

I gowned up to walk him in the OR and be with him while they gave him his mask for the anaesthesia.  The nurse was kind and treated me with kid gloves.  “You may see his eyes roll up in his head,” she gently warned.  I remembered that horrible first operation, how I sobbed and begged the people in the room to take care of my boy.

“This is his third eye operation,” I answered, “so I’m kind of used to it now – but thank you.”  How kind they were.  As soon as his eyes closed and he relaxed back onto the operating table, I kissed Boo and left the room.

While I was sitting with my mom in the waiting room, the reception desk phone rang and they called my name.  My mother and I looked at each other, trading fearful glances.  It hasn’t been long enough.  And then to make it worse, they tell me it’s Dr. S (the surgeon) on the phone.  But only to tell me the surgery is over, that Jonah did fine, that he is in recovery.

Soon afterward we were at his side as he groggily asked for ice cream.  They did let him have red popsicles, and he ate three.  His left eye was weirdly wide-opened and dilated, but not oozy or yucky and he kept blinking it shut hard.  It was as if it wasn’t quite painful or itchy (and of course I don’t know) but rather sensory-deprived.  He wanted pressure on the eye.  “Kiss eye,” he begged me over and over.  I told him to close his eye and I kissed the eyelid.  He smiled and giggled; grabbed my hand to pull me closer. “Kiss eye,” he said again.  I must have kissed his eye a dozen times.

My brave, wonderful boy.  They drove him up again today for a follow-up visit with the doc/surgeon, and this time my dad came with us.  Jonah was amazing again.  He read the eye chart and held the little black instrument to each eye (and yes, he tried to cheat again), he put his little chin into that scary eye machine, he tipped his head back for the eye drops, and he was calm through examinations with scary looking instruments.  To be honest, he is better at the eye doctor than I am.  I hate having drops put in my eye, and when they don’t explain to me what’s happening and what exactly they are going to do to me, I get physically sick.

Before both visits Jonah paced small circles and asked in the van? (meaning can we please get the hell out of here now?)  Today I used new Strawberry Fields tic-tacs and pomegranate seltzer (which he dubbed, of course, white soda) to treat him.

He immediately identified the tic tacs as candy and started asking for them as such.  I’d give him one or two between procedures, instructing him to chew.  He was so good and so happy.  I know this sounds weird but it really made my day.

The day started off shitty, too.  It is the 10th anniversary of my best friend Gina’s suicide.  Now she has been gone longer than I knew her.  This morning was awful, with me walking around weeping and poisoned by putting on grief, dressing myself in it as a burden in martyrdom…but M, Andy, & my friends/readers loved that nonsense out of me.  Thank you.  And Gina, watching over my boo, guardian angel style.  Thank you, Brother Peen.  I love you.

It turned out to be kind of an amazing day.

Jonah and “Pa” (my father)

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Jonah’s a big fan of the salad bar bath.

warm water, crisp salad, & lemonade

We had a great visit with Jonah on Saturday, and I went back to eating solid food.  There isn’t much else to report, or rather I’m feeling numb and surreal today.  I’ve been afraid to do much of anything, lest the devil-ache come back.

Is it safe?

Here, as always, are photos to compensate for my word-loss.

swimming’s “closed” – so we waited for the train.     (it came)

Jonah means business when it’s time                           to go to the grocery store!

Ready to roll…

I will see Boo on Tuesday; after my early a.m. neurologist appointment, I should be right on time to meet him for his glaucoma specialist.  I think my mom wants to come to this one.  (His, not mine, of course).

I’m bone tired.   Truly.  Tired in my bones, all tight and hurt-y.

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Sometimes if I leave too much time between entries, everything happens at once, and then I’m facing the task of the telling of it all.  How about a Reader’s Digest version, at least for now?  I’m so tired; I think I’m getting sick.

  • I got my genome results and now have all this information I can barely understand.  I think I’ll  contact a genetic counselor and see if s/he will go over it all with me.  I am mostly Northern European and I have genetic similarities with the following famous people:

    Famous People

    • C3 Genghis Khan
    • B2a1 Chris Rock
    • E Al Roker
    • E1b1a8a* Desmond Tutu
    • E1b1b1c1* Napoleon Bonaparte
    • G2a3b1a King Louis XVI
    • I1 Jimmy Buffett, Leo Tolstoy, Warren Buffett
    • I1a Alexander Hamilton
    • J Matt Lauer
    • J2a1b Dr. Oz, Mike Nichols
    • O1a1 Yo-Yo Ma
    • R1a Anderson Cooper
    • R1b Charlie Rose, Emperor Nicholas II of Russia, John Adams, John Quincy Adams
    • R1b1 Franklin Pierce, James Buchanan
    • R1b1b2a1a Malcolm Gladwell
    • R1b1b2a1a2d Mario Batali
    • R1b1b2a1a2f Stephen Colbert
    • R1b1b2a1a2f2 Henry Louis Gates, Jr.
    • R1b1c William McKinley, Woodrow Wilson, Zachary Taylor
    • T Thomas Jefferson

    Don’t ask me what the letters in front of the names mean, because I have no clue.  I am such a Heinz 57 that I ‘m genetically similar (in order of closeness) to the:  French, German, Norwegian, Irish, Austrian, English, Australian, Russian, Ukranian, Polish, Italian, Sardinian (an Italian island), North Italian, Tuscan, Basque, Curripaco, Puinave, Palestinian, Bedouin, Druze, Mayan, Pima, Surui, Karitiana, Mozabite, Byaka Pygmy, Mbuti Pygmy, Mandenkalu, Yoruban, and, last but not least, the San –  one of several names used for southern African people who speak “click” languages and whose traditional means of subsistence is hunting and gathering. (yes)   There is information about genetic predisposition to disease and carrier status, but not much that helps Jonah.  There’s no autism gene marker, and I am not a carrier for arthritis or any eye problems.  I actually have a decreased risk of just about everything.   There is a “relative finder” part of the site and I am already hearing from people within the site who think they might be my 3rd or 4th cousins, based on lengths of pieces on DNA strands.  Or something.  I need to take their “Genetetics 101” course.  Lots more to this story but I promised the Reader’s Digest version so there you go….at least for now.

  • I have decided I am going to see Pa’s fiddle and soon, damnit, come hell or high water.  I turn my back on the beach this year and am flying with M to Springfield, Missouri, where we will stay for 4 nights.  The first full day there is when I want to drive to Mansfield and go to the Laura Ingalls Wilder House and Museum.

* It will be my birthday! *

To end, as usual, I will post Saturday-Jonah pictures.  He went to the pediatric rheumatologist on Friday and was more than a little squirrely on Saturday.  But we had plenty of water fun!

Boo in the backseat, sucking his thumb, sittin’ all sideways, listening to old school rap with his dad. Punk Ass.

I tried…

…and tried…

…to get a cool picture of him jumping in, but (A) I’m not a photographer and (B) my camera is your average digital – always seems to take the picture a half a moment after you want it to.

…and finally got him mid-jump!

My happy water-boy-boo

Jonah says “need help?” and his dad lifts him out of the water.

He’d try to make it to the other side of the Hudson if we let him!

Bedtime for me.  It’s like 8pm.  LAME.

My very DNA is achy.  😉

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I love when Jonah’s school sends me photos:

Jonah, my little Boo, connecting his train cars carefully at school

Oh, Jonah.  Mama and daddy are trying hard to advocate for you while dueling eye docs offer equally insistent yet diametrically-opposed opinions on your Retisert implant & whether or not to take it out.

Eye doc number one strongly recommends NOT taking it out at this time and thinks doing so could be dangerous.

Eye doc number two seems anxious to remove it, and the sooner the better.

Every pediatric ophthalmologist I can find within this area is in the same practice as either doc one or doc two, so no real possibility for another opinion there, and these constant medical problems for my little boy are pissing me off today.

Stop piling all this shit on my child, damnit…. most of Jonah’s doctor visits are two-to-three hours long, odysseys of which Jonah endures with admirable spirit and patience.  The poor kid.  I do research online and pore over articles I can only half-understand even after two or three re-reads.  Today I called the nurse at Jonah’s school and am going to call his primary care doc first thing Monday morning.  We all need to advocate together.  Andy has long shifts of work now so it takes both of us to figure all this out.

There is more.  Doctor number one sees “activity” in Jonah’s right eye indicative of the same uveitis as the left eye.  Now Jonah has drops given to him in both eyes.  I’ve read articles about uveitis, claiming that it is responsible for 17% of vision loss, and I’ve read articles about how glaucoma is treatable until surgery is necessary.  After that I hate the word they say.  Blind.  I’m going to indulge in my histrionic state of mind and say if Jonah loses his vision I will go fucking stark raving angry, mad with the universe, mad crazy.  Mad.

I would never blame Divinity.  I don’t believe God works that way.  I don’t believe “God does not give you more than you can handle” and I do not believe “God only gives special children to special people.”  They are nice things to say but I do not believe them.

“I do not think God makes bad things happen just so that people can grow spiritually.  Bad parents do that, my mother said. Bad parents make things hard and painful for their children and then say it was to help them grow.  Growing and living are hard enough already; children do not need things to be harder.  I think this is true even for normal children.  I have watched little children learning to walk; they all struggle and fall down many times.  Their faces show that it is not easy.  It would be stupid to tie bricks on them to make it harder.  If that is true for learning to walk, then I think it is true for other growing and learning as well.

God is supposed to be the good parent, the Father.  So I think God would not make things harder than they are. I do not think I am autistic because God thought my parents needed a challenge or I needed a challenge.  I think it is like if I were a baby and a rock fell on me and broke my leg.  Whatever caused it was an accident.  God did not prevent the accident, but He did not cause it, either…. I think my autism is an accident, but what I do with it is me.”

 ~ Lou Arrendale, the main character.  He has high-functioning autism.

From Elizabeth Moon’s The Speed of Dark

I agree with Lou’s assessment of what God causes and what God doesn’t.

Years ago, before he had uveitis or glaucoma,                    posing with his big brown eyes

What’s keeping me from freaking out entirely is that God has gifted me with doctor number three, brilliant and kind, who lets me cling to him….all during breakdowns, emergencies, and these kinds of what-the-hell-do-we-do-now decisions.   He’s going to help us get to the bottom of all this.  He’s my ace in the hole.

For now I’m going to just enjoy seeing Jonah tomorrow.  He’s been a good boy, they tell us.  Good in school, good at his house.  Good = no aggressions.  Good is what I will focus on.  What you focus on expands, they say.

Focus.  I really meant no pun.  But for now I’m done.

(I didn’t mean to rhyme, either).

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“They say Jonah was swallowed by a whale
But I say there’s no truth to that tale
I know Jonah
Was swallowed by a song…”

~ Jonah by Paul Simon

Jonah has a broken finger incurred sometime during this morning’s tantrum/attack/aggression, on the bus that takes the kids up to the school building.  They took him to the hospital, x-rayed his hand, splinted his finger, brought him back to the house.  Not an enormous deal but one that caused me some concern.

His regular nurse was so kind when she called to tell me.  “Jonah is fine,” they always start out by saying.  Sometimes he isn’t – not really, but at schools like this everything is relative.  And he is fine.  He is safe and he is fixed up and it is over.

But I asked her to please contact Andy first next time.  Andy lives 5 minutes away.  I live an hour and a half a way.  I have a full time job, and I can’t be at my desk crying, like I nearly always end up doing.   I’m a crybaby, they need to understand, “strong mother” or no, and you can’t make me lose it at work because then nobody wins.  I need my job.  Let Andy call me at 5:30 when I get home from work and then tell me what happened, unless it’s an “he’s not okay” emergency.  Andy’s willing to do this and we’re going to try this new “leave mom out of the loop for a few hours” plan.

I’m tired of the merry go round.  I want off.  After a while it makes you sick to your stomach.  Your horse or your ostrich or your donkey goes up and it goes down, over and over, while the merry go round itself circles round and round, all with the bad-stereo strains of carousel music playing too loud and endlessly, no way off, no one to stop it all.

I just don’t have the fortitude.

for·ti·tude

[fawr-ti-tood, -tyood] Show IPA

noun

mental and emotional strength in facing difficulty, adversity, danger, or temptation courageously: Never once did her fortitude waver during that long illness.
They ain’t talking about me, folks.
Ah, but wouldn’t you rather see some new pictures instead?

Our dog Jack has the United States of America on his nose.  Look closely.

Jonah loving Guardian Gus

Beautiful rosebushes

Thus ends a long Thursday.  Across the miles I am holding my son in my arms, so close, smelling his hair, breathing him in, and he is calm, and we have snuggle time, and we are both swallowed by a song…a lullaby…

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Today, a poem I wrote some years ago, about Jonah’s birth:

When finally the doctors sigh,
speaking masked amongst themselves,
and cut you
howling
out of me, I am but a writhing animal,
drugged and brazen-blind by dazzling alien lights.

Then there are pillows, and silence,
and you are sleeping on my chest

and suddenly I have a star, and the moon,
and everything else unceasingly celestial…
my view so clear I memorize the shape
of every constellation.

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