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Archive for August, 2011

I’d imagined Boo happy, playing, eating good food and watching videos, walking around the campus with one of the direct care workers, swimming in the pool, riding his scooter. I didn’t want to hear him to see us and remember – to cry mama, to ask for home or daddy – not yet. I didn’t want to have to drive away from him.

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Yesterday was Andy’s birthday. I made him a photo frame set with a bunch of pictures of he and Jonah. He’s moved down to an apartment in Rhinebeck already; yesterday I called a bank and locked in a 3.5% interest refinance on a mortgage so I can keep the house and give Andy his share. I am so glad, and a little jealous, that he is so close to Boo.

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My world is now near-free of dread. I don’t mean the “damn, tomorrow is Monday and I have to go to work” dread. I mean the dread that lives inside you and owns you. The kind that makes you steel-stiff & come unglued – the kind that’s unrelenting, ubiquitous – there all at once, all the time, even in your dreams, for whatever the reason. ‘Capital D’ Dread. It’s gone. I am not going to show up to work with scratches on my face and I am not going to trudge into LensCrafters again and again with broken glasses to have my glasses repaired by S, who I’ve seen so many times we are almost friends.

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Tuesday was a series of one weird, strange, amazing events after another, most of which occurred after we’d left Jonah behind at the school. And everything has been surreal since.

Jonah Russell “Boo” Krebs was admitted into the Anderson Center for Autism 34 years later to the day Elvis Presley died. There’s a reason I noted the Elvis connection but I don’t want you to think I’m creating connections where they don’t exist, schizophrenia-style, so I’ll let that fact just sit there for now.

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i’m here, & humbled

I’m going to come back soon and tell the whole strange and mournful (and so much more) story, but before that I want to lie on the bed and do nothing.  But before that I want to thank every one of you for praying, reaching out, sharing, virtual hugging, and holding us in your hearts. [...]

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“No I would not give you false hope On this strange and mournful day But the mother and child reunion Is only a motion away… Oh, little darling of mine I can’t for the life of me Remember a sadder day I know they say let it be But it just don’t work out that [...]

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far away

You’re probably dreaming that you’re flying on

and you start to fall

But then you rise
and shine forever

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tomorrow

“If ever there is tomorrow when we’re not together, there is something you must always remember. You are braver than you believe, stronger than you seem, and smarter than you think.

But the most important thing is, even if we’re apart.. i’ll always be with you.”

Winnie the Pooh

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words

I can’t talk anymore.  If you e-mail, or text, or call, or twitter me and I do not answer, please know it is only because i just can’t.  The words have left me. I’ll borrow words from books or songs or quotes until my own words come back. I find hope in the darkest of [...]

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‘What I see here is nothing but a shell. What is most important is invisible . . .’”

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